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  1. M

    Trial Report Explanation for symptoms and biographical repair in a clinic for persistent physical symptoms, 2024, Burton

    I'll have a stab at translating: biographical, meaning - the story of a person's life repair, meaning - restore (something damaged, faulty, or worn) to a good condition: from the paper - "in which identity is reconstructed and a new normality is restored" Sort your beliefs emotions and...
  2. M

    Australia: RACGP: GET for CFS

    Oh they've updated it alright, this whole page is a masterclass in deception : "Incremental physical activity has also been shown to improve muscle strength, cardiovascular endurance and symptoms in a wide variety of conditions that have chronic fatigue as a symptom, such as heart disease...
  3. M

    Australia: RACGP: GET for CFS

    :)
  4. M

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    I question how they're doing their reflective practice. Everyone has become so used to thinking of patients in a discriminatory, dismissive, and derogatory way, that in their minds it might be a given that success proves their theories, and those that are harmed are not their fault anyway...
  5. M

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Sorry, I didn't mean that, I meant the general content of the MEA statement.
  6. M

    The Right to Life, Health and Patient Safety: Universal Human Rights 1948 – 2024

    World Health Organisation: Patient Safety 18 Apr 2024 - WHO launches first ever Patient Safety Rights Charter “Patient safety speaks to the first, fundamental principle of health care – ‘Do no harm’. Assuring patient safety is a global priority, and a critical component needed to achieve the...
  7. M

    Australia: RACGP: GET for CFS

    Apart from the obvious ethical problem of providing an entire service based on a single Trial which has been internationally debunked (the fact that it has still not be retracted is in itself a cause of iatrogenic harm as evidenced in this thread, ongoing), why are they unable to rely on their...
  8. M

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Photosensitive epilepsy. Photosensitive epilepsy - Epilepsy Action Would they go to a patient's bedside and start flashing lights? News reports stated that Millie had a seizure shortly after they began their aversion therapy approach regarding light exposure.
  9. M

    Debugging the Doctor Brain: Who's teaching doctors how to think?

    WOW :jawdrop: One word in these three sentences on this thread in particular, combined with watching other discussions recently, has led me to what I believe is the last link in the chain that are the events of 2023 - which explain the situation we are now in. That word is 'code'. It impacts...
  10. M

    UK: Collecting evidence on problematic UK approaches to ME/CFS and Long Covid

    This happened at the Bath clinic 10 years ago, sometime between 2012 and early 2014, when they began helping cancer patients managing fatigue.
  11. M

    Review Neurasthenia as a model of a disease thought to have disappeared. On an unpublished letter by Jean-Martin Charcot, 2024, Pérez Martínez

    :) with the knock on effects to the DWP and lost tax revenue? Stratospheric costs. It's clearly one of the reasons why the 2001 Woodstock Malingerer's conference happened. Just a shame they didn't spend more on biomedical research isn't it. It's one of the things the Private Members Bill...
  12. M

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    I'm curious as to why these cases mostly only happen in England. I think there was one in Wales wasn't there? The health service is devolved in Wales, so they don't share the same health regulations. Mostly similar but they are not bound to follow those which England create. None in Scotland...
  13. M

    Review Neurasthenia as a model of a disease thought to have disappeared. On an unpublished letter by Jean-Martin Charcot, 2024, Pérez Martínez

    Fact: what other illness can you think of, which requires a Private Members Bill being given permission to be laid before Parliament, to get it and the medical profession to acknowledge that the illness has been recorded by the world Health Organisation as a neurological illness since 1969? I...
  14. M

    UK RCGP helps with supportive LC leaflet for GPs

    'Sleep hygiene' I suspect. It's what they taught in Bath back in 2011 and still teach today, including the activity management etc and mindfulness. I'm not a bit surprised that this has been endorsed by the RCGP and being distributed by NHSE. Long Covid patients haven't yet acquired the...
  15. M

    Review Neurasthenia as a model of a disease thought to have disappeared. On an unpublished letter by Jean-Martin Charcot, 2024, Pérez Martínez

    Only need to look at 1988 I've copied and pasted this from my legal research file: Myalgic Encephalomyelitis (Hansard, 23 February 1988) (parliament.uk) (23 Feb 1988) Private Member’s Bill asking the House to acknowledge the clinical illness known as Myalgic Encehalomyelitis with with annual...
  16. M

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Look at this from that paper: "However, it seems likely that any harm reported from patient community surveys reflects poorly implemented therapy, as well as possible misdiagnosis of CFS/ME.31, reference 31 is this paper Use of an online survey to explore positive and negative outcomes of...
  17. M

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Can you remember where he said that? Link required for evidence.
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