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I know we all may react differently, but, for what it's worth, I want to share that I had the first shot (jab for you Brits) of the Moderna vaccine on Jan 6. I have to say I was a little afraid as I do not do well with many medications and supplements. Even changing the brands of something can...

What a wonderful article, @Brian Hughes! How refreshing to see straight talk based in reality instead of the bs put out by the BPS brigades. Needed to be said for a long time. Hats off to you. From a very grateful ME/CFS patient. :thumbup: :) :angel: :balloons: :emoji_bow: :emoji_clap:

Or is this metabolic encephalopathy a part of the whole ME/CFS complex that results in the brain fog and sleep disturbances we experience? Or does this metabolic encephalopathy develop as a result of having ME/CFS? It surely would be helpful to have some answers.

I had a qEEG done many years ago by a neurophysiologist. It was one of the best things I did. Besides helping me with ME/CFS, it was proof to my family, who was threatening to send me away to an institution for "therapy," that there was indeed something physically wrong with me. This qEEG...

Thank you for sharing your story and experiences, @cfsandmore. I was very touched by your post. Sorry you learned all of this the hard way. Welcome to the forum. The understanding and support we receive from each other, as well as the discussion of the science surrounding ME/CFS, are very...

Let's just think a little more about the practicality of Dr. O'Leary's proposed CFS construct. It seems like she is presenting this in an effort to help Long-Covid patients from being short-shifted by the medical community as CFS, ME, ME/CFS, CFS/ME patients have been for decades. What would...

Sorry, Dr. O'Leary, I just don't buy your explanation or your statement that there is nothing in your BMJ letter that implies the Sharpe/Wessely construct is credible. I think the opposite is true. You present a case for it. You even want to give it legitimacy by naming it -- CFS. A...

That is not the original understanding of CFS and appears in none of its definitions. The above statement is a perverted concept of CFS developed by bPS psychiatrists/psychologists. They made it up. It is not a valid theory, but they sold it as such. The so-called "definitive" PACE trial...

Well said, Kirsten. Sums it up well. Thank you.

I wouldn't support it because Wessely and Sharpe were and are wrong. I wouldn't support their ideas in any way. It should be acknowledged that they were wrong and their ideas discounted at every turn. They and their ideas have done considerable damage to patients and I wouldn't award this...

Hits the nail right on the head. In spite of the serious nature of your post, it made me laugh for quite some time. So refreshing to see such simple truth spoken so simply and directly. If only these bPS researchers could get out of their own way to recognize this simple truth.

I've read as much of this as I can stomach. For the most part I find their therapy built upon a convoluted pile of horsesh__. Their basic premise is totally wrong. My heart goes out to anyone subjected to their nonsense. They are so sure of themselves that I fear the only way to get through...

Again -- brilliant! It is so appreciated to hear clear, accurate thinking on the subject. This is what was needed a long time ago. But, as you say, we will not rest until this wrong has been righted. :thumbup:

Brilliant. Right on point. Thank you!

Couldn't agree more. I am always so disheartened to see over and over again research on ME or CFS published in the "Journal of Psychosomatics" and the like. What does this say to the world, including medical professionals, about this disease?!? It gives the entirely wrong message and only...

I don't really have any suggestions to offer. I liked your letter, applaud your efforts, and wish you well with this endeavor. Welcome to the forum by the way.

Beautifully stated. Truthfully stated. Clearly stated. Goes straight to the heart of the matter. So grateful for your perseverance and presence here with us and on behalf of ME patients around the globe. Many, many thanks Dr. Edwards. :thumbup: :heart: :emoji_bow:

They just can't let this meme go. I have lost all faith in the medical profession. :wtf:

Thank you for your excellent understanding and presentation of the whole situation surrounding ME. It gives me hope that there is finally the possibility that we can proceed on the right track if others will begin to understand this as well. I am grateful.

I get your point, @Jonathan Edwards, about the level playing field for ME treatments and do not disagree. What I do disagree with is the "use of GET does not give rise to claims of FII and removal of children into care." I believe it does, both directly or indirectly, and that is what makes me...