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@perchance dreamer Thanks for this video. Do you have a link for the seated routine you mentioned?

I'm quite sure RR isn't American. It's too bad DwME seem so closed-minded. The understanding or expertise of the readers of this stuff isn't the issue; it's the writing itself that's weird and obtuse. Every American lawyer is well familiar with medical terms involved in the law. Sheesh!

I read Osler's Web back when it first came out and I had the mental bandwidth to understand it. As I recall, it was very heavy going, both for the level of detail presented and for the voluminous number of citations of authoritative documents and interviews. The Why is but a mere shadow of...

Where are the RCTs, showing that all patients with ME/CFS have PEM, when you really need them?

I'd like to read this, but can't find the link or referenced thread.

The only "emotional discomfort" I've experienced since being infected is primarily due to the gaslighting, neglect and downright hostility I've experienced at the hands of the medical establishment.

:heart:

That happened to me too, and I just skipped those questions after thinking, once again, how even ME organizations don't "get" severe ME.

Much as I would have liked to give to UK charities as requested, I could't do it online and find it too taxing to write and send a check. So I gave to @dave30th's fundraiser, since his work has been key in dismantling PACE, and I even figured out how to show it was in memory of Graham on the...

I have put in my two cents x ? ;):laugh::rofl:

I looked at the description of the study linked in the article. It appears that the study was to explore issues of loneliness in individuals who were moving into retirement communities. And there is an industrial partner (I believe that was the phrasing) interested in finding ways to improve...

I'm surprised that they chose people whose spouses or partners had died as exemplars of some of their points, rather than just people of a certain age. And truthfully, I think I recognize some of these issues as a person with ME, not as a person of a certain age. These issues don't ring true...

My experience is almost identical.

The inability to cope with social media in particular should not be underestimated.

Thank you! I usually can figure these mysteries out for myself, or research them, but I got hung up on this one. TC is also the name of the mascot for a baseball team, and I couldn't get past that.:confused::laugh::rofl:

TC?

May I suggest by putting it in the bin? :banghead:

It seems to me we can't on the one hand say "we don't know" what the prognosis is, and on the other publicly argue that this disease takes away our lives and causes us to be among the millions missing. The fact that this goes on for years, and that people seldom recover, is a key argument in...

So I guess that, at age 80, I no longer have fibromyalgia. Tell that to the areas of my body that cannot tolerate pressure without significant pain.:rofl::laugh:

I suspect they may be unable to imagine that people can be left severely disabled for the rest of their lives, and they want to be encouraging.