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There's just no end to it. I had a terrifically itchy rash once---considered by MDs to be about the worst---then the rash went away, but i still itched. The dermatologist told me i had "phantom itch" and nothing could be done about it. ETA: Correction from "pain" to "itch" due to a cognitive...

I have both ME and another autoimmune disorder. From comments on this forum I think that's quite common.

Sadly, @Sisyphus, though I am a fellow pedant re. language usage, I must agree with @Peter Trewhitt. I offer as evidence my doubt that anyone on this forum, other than a linguist specializing in English, would be able to read and comprehend even one paragraph of Beowulf. Many readers cannot...

The very best doctor I've ever had was at the Mayo Clinic. What made him the best? He believed what I told him about my body and, despite all negative test results, pursued diagnosis until he found out, through biopsy, what was wrong: a rare autoimmune disorder. He also took me as a full...

b.s.

Hennepin Healthcare has, unfortunately, a dodgy reputation caused largely by their involvement in a "study" in which members of the public (largely minorities) were given ketamine by HCMC paramedics at the request of cops, and without the patients' permission. This study was undertaken by one...

What facts underlie this feeling? Do you have some inside information?:)

Duh! Seems that I didn't think about the fact that a computer or paper would work as well, as long as someone else could deal with the futzy stuff.

Thanks, @Amw66, for flagging me in this thread. Figuring out how to include severe patients is critical. I find myself in agreement with many of the comments above, especially those of @Trish, @Simbindi, @lunarainbows, @Invisible Woman and @Daisybell. My current problem is that I just can't...

I feel so lucky that I was close to 50 when I got ME.

Thank you for doing this, @Kalliope. It's a real service!:thumbup:

:eek::rofl::p

:confused::laugh::p:rofl::emoji_clap:

There appear to be substantial differences between US and UK when it comes to medications. In the US ibuprofen, diclofenac and naproxen 9at least in the past) are readily available and I've never heard of any risk with these drugs except for liver damage due to overdose of ibuprofen. What...

I believe it was looked at in a study cited by @Hip. Sorry, but don't remember the name of the investigator. The study referenced by @Tom Kindlon above, by Dr. Shungu et al., is the one that @Hip cited, I'm quite certain. There's a discussion in this thread: NAC - how best to take it...

Hmmm---I've taken NAC for a couple of years now and it has ended my "tired but wired" feeling. So I've found it extremely useful.

I got a scooter about 8 years ago, and it was a great relief. I love it and have fun with it too. But I now need a power wheelchair for in the house, and I just can't get myself to commit to it. They seem so big and ugly, and I can't face the fact that this is where I am in my life. My...

What kind of shopping are you envisioning? There's so much difference in weight between a bag of groceries including a lot of cans and a bag with clothing. Does "shopping" in the UK mean only grocery shopping?

Thank you for this terrific set of cartoons!

Merged thread Informative Background Reports on Pandemic Issues I have come across a series of reports from one of the most prominent epidemiological "think tanks" in the US, the Center for Infectious Disease Research and Policy (CIDRAP). I have found the reports extremely useful in...