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it seems the wikipedia entry has been fixed, to remove the "rare form of CFS" error. the news article (March 2016) still carries that quaint claim. http://www.skysports.com/more-sports/other-sports/news/29876/10252350/kickboxer-ruqsana-begum-thinks-world-title-win-can-be-a-game-changer

(excuse my lack of science) ... i'd like to see a scale that translates to real life ... and similar to the decibel scale ... when i was 'mostly well', i could cycle 50 kms and only be a little bit tired, recover within a few hours. [100%] with moderate ME, i struggle to walk 50 metres...

interesting. POTS was one of my earliest symptoms, and sulfur dioxide (E220 preservative) makes me feel ill. sulfur dioxide can cause vasodilation, and other cardiovascular problems, which fits with this theory. it can be reduced by taking n-acetyl-cysteine and glutathione...

just to add my 10 cents ... she might have gradual onset ME ... - - - - - i had POTS at age 19-23; caught mononucleosis / glandular fever / epstein barr virus at age 21; for the next decade i had intermittent problems with my health, that included episodes of *severe exhaustion* that required...

nice photo. "chronic yawning syndrome" or "chronic sneezing syndrome" :emoji_thinking:

sometimes my feet (or eyes) get confused about where the ground is.:confused::unsure: or one foot rolls outwards.:oops::alien: or i walk okay, but drop the item held in my hand.:eek::giggle: or i walk okay, but collide with the walls / furniture.:blackeye::rolleyes: or i fall over on a...

personally, i like pacing with a heart rate monitor, because it's objective. instead of pretending to myself that 'a few more minutes of this light activity shouldn't be a problem', i can look at my wrist-HRM, and know IMMEDIATELY that my heart rate is still nice and low, or is about to cross...

sorry, i don't have specific links. some of it will be here ->http://www.workwellfoundation.org/sample-page/

Workwell Foundation have published guidelines for pacing with a heart rate monitor, based on their research. Workwell recommend that we don't cross our anaerobic threshold, because it will trigger PEM / PENE. (and Ron Davis suspects that PEM reinitiates the ME/cfs metabolic state). if you...