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thanks @MrMagoo I did know a Sharon years ago with ME. She lived right at the other side of the city to me. I hope it wasn't her. :( I'll see if I can find out anymore on FB

Doe does anybody know which hospital she was in? This is my neck of the woods. not able to go on twitter.

Thanks hotblack. I may try that.

the one u sent to the lord in the HOL. Ach ..Sorry he was an old friend , so there were maybe a few emails. no worries. If there were a few - asking about him joining the APPG etc and about ME . I would probably get confused :confused: very easily done !

Would you feel able to share your full email? my MP has previously shown an interest in ME. and I have wondered about writing to him. but havent for two reasons - I am severe/v. severely affected and and can have difficulty with writng/typing at times as well as having severe cognitive issues/...

Yeh . I was out by a couple of years. Gorden Brown became PM in 2007.And I thought it was £60, Not bad for someone with severe cognitive issues / brain fog etc. Also Not sure if it was solely because of the financial crash, there were other political reasons.

its not the 1st time in 52yrs. it was raised before but only for 1 year. Cant remember exact year.it was when Gordon Brown was chanceler.[ sp :laugh: ] the Xmas before the year of him taking over as PM from Tony Blair so probably about 20 or so years ago.. it was raised to £60 for that year...

I am not able to read many of the posts. I had a care plan last year. I am severe / very severe. It was because of malnutrition. In my experience it wont work unless all the people involved have , or the majority at least , a very good understanding and acceptance of the complexities / issues...

Dont have any spare money:( but shared where I can . fb groups and twitter. thank you Dave

If I am able to later will have a look. As a btw I am going to challenge the decision by social services that I dont need help with food [ or ' maintaining and managing nutrition' ]

yes. in conclusion. sexual violence has these extremely negative and long term consequences because of the interconnectedness of mind ,body and soul. I'm a sexual abuse/violence survivor and that sentence is like :banghead:

And big thank you to you Luna for all your input on severe/very severe me.

thank you so much to s4me and all the work the team has put in. I haven't been able to read much but felt tearful [in a good way] about some of the things in the submission re. severe /very severe me

the one OT I had who was awful was one I had to see for an assessment of my housing situation. but her report did help .despite her attitude . as I was having to use a wheelchair around the flat and the hall was very narrow and it was impossible to manoeuvre the electric wheelchair around . and...

my experience of OTs has been mostly good. I've seen 4 over the past decade. two were very good, helpful and supportive. one was pretty bad. one , who I saw a lot of when I was in hospital ,was wonderful. She was so supportive. She made a huge difference to my 2 week hospital stay. [amongst...

http://anilvanderzee.com/your-silence-is-killing-m-e/ haven't been able to read much of this but think it maybe relevant eta Anil is a gay man with severe ME

I think I am going to give them a go. They have a much higher noise blocking rating than the ones I use - the E.A.R foam ones.