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  1. Alis

    Ear muffs for better rest

    Ear defenders do cut down a lot of noise [compared to muffs ] but I can only wear them for short periods maybe up to 2hours as they can become painful to wear after a while [jaw and side of face.] I have heard noise cancelling ear phones are good but they are expensive.
  2. Alis

    Severe M.E Day - 8th of August 2020

    I wasn't sure where to put this. Kara Jane has severe ME and she has recorded a single and an album. The single has been released today. Baby Breathe. The album Its Still M.E. will be released on Aug 8th. Money raised will go towards establishing a post mortem research facility for those that...
  3. Alis

    UK - Resources for help getting food during quarantine and other supermarket related problems

    :laugh::laugh: :rofl::rofl::rofl: My parcels are exactly like yours. Except I graduated to hobnobs several weeks ago.:p
  4. Alis

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I 'm not sure. I put a number of things in my basket to test it out. It said they can deliver them in 30 mins - 90 mins ! so I think you do order direct from them but they then arrange an independent delivery driver to deliver them to you.
  5. Alis

    UK - Resources for help getting food during quarantine and other supermarket related problems

    This looks like it could be useful https://www.beelivery.com / they say they can delivery within 45-90 mins. it looks like it is nationwide. and they do have a huge selection .[household , grocery , meat, frozen ,snacks etc etc]
  6. Alis

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I have just logged into tescos , there are still some slots available for Wednesday if anybody is interested , may have to be quick though as I think they are going fast.
  7. Alis

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Thanks . I have now registered with it. I have to have very low fat meals [ gall bladder/ pancreas problems] but it looks like they do do a range of low fat meals
  8. Alis

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Wondering about this ? Is this what used to be called Meals on Wheels?
  9. Alis

    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    Yep me too. your flat and @Hell..hath..no..fury... sounds like mine too. Drug dealer next door - who is laying low - all the frequent , very short visits lessened - its so much quieter ! and have a young guy with severe mental health problems and alcohol abuse issues below who is constantly...
  10. Alis

    Coronavirus - worldwide spread and control

    Matt Hancock [ health secretary ] has also tested positive
  11. Alis

    UK: Coronavirus Bill could leave thousands of Disabled people without support

    I read this article by pwme [ well some of it , it is long ] about social care. It reflects my experience. https://www.ajourneythroughthefog.co.uk/2020/01/accessing-social-care-in-england/ What no one tells you about accessing social care in England.
  12. Alis

    UK: Coronavirus Bill could leave thousands of Disabled people without support

    ffs Cant write much , but been having so many problems with care. was told on Friday I have been transferred to another team , to carry out another care assessment. but they have a waiting list so may be a while. If this goes thru then I may not get it ? Also just read in the independent...
  13. Alis

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Andy I don't know if this is any help.wondered if it might be an idea to highlight this is some way on here.either now or later.I saw this on PR, , I rarely go there now .it was the top new post and by somebody I know. there was little interest on pr. I came here [ my usual go to first place...
  14. Alis

    Severe ME day: August 8 2019

    I saw this on FB and having so many problems with sharing it . copying/paste etc so I have written it out . This was written by Marion Michell Imagine the most hushed .unrushed procession possible flocks of people with severe ME filling the streets. on berths, bunks, beds...
  15. Alis

    Severe ME day: August 8 2019

    :thumbup:
  16. Alis

    Severe ME day: August 8 2019

    its not a celebration .it is an awareness day
  17. Alis

    NICE guidelines - Resources on severe and very severe ME.

    Action4ME did a survey a few years back on social care for pwme.It wasn't specifically for severe me but I did read quite a lot of it at the time and it was pretty good and relevant to me [am severely affected ]and I was very surprised as it was action 4me also Greg Crowhurst book caring...
  18. Alis

    Severe me feature on bbc five live

    HI everyone there is a feature on bbc radio five live about severe me today.with Charles shepherd ,a severe me person and also be a phone in . from 3pm. I''m severe / very severe and struggling today - so its on the me association website if any body could put up a link etc and if anyone...
  19. Alis

    Silence challenge for severe ME

    The 25% me group also runs a closed facebook group. https://www.facebook.com/groups/1421378731464024 This is a safe online severe me community. to join message Jan Johnson with a request to join the closed group.You don't have 2 be a member of the 25% group and its international - not just uk.
  20. Alis

    Severe ME day: August 8th 2018

    I ;m struggling to write at moment .severe /very severe. but wanted to highlight I started a thread last week for a the silence challenge for severe me for the 25% group if anybody felt able to donate even one £ would be great. it is in the fundraising thing sorry :( :ill: all typed out now
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