Ear defenders do cut down a lot of noise [compared to muffs ] but I can only wear them for short periods maybe up to 2hours as they can become painful to wear after a while [jaw and side of face.] I have heard noise cancelling ear phones are good but they are expensive.
I wasn't sure where to put this. Kara Jane has severe ME and she has recorded a single and an album.
The single has been released today. Baby Breathe. The album Its Still M.E. will be released on Aug 8th.
Money raised will go towards establishing a post mortem research facility for those that...
I 'm not sure. I put a number of things in my basket to test it out. It said they can deliver them in 30 mins - 90 mins ! so I think you do order direct from them but they then arrange an independent delivery driver to deliver them to you.
This looks like it could be useful https://www.beelivery.com /
they say they can delivery within 45-90 mins. it looks like it is nationwide. and they do have a huge selection .[household , grocery , meat, frozen ,snacks etc etc]
I have just logged into tescos , there are still some slots available for Wednesday if anybody is interested , may have to be quick though as I think they are going fast.
Thanks . I have now registered with it. I have to have very low fat meals [ gall bladder/ pancreas problems] but it looks like they do do a range of low fat meals
Yep me too. your flat and @Hell..hath..no..fury... sounds like mine too. Drug dealer next door - who is laying low - all the frequent , very short visits lessened - its so much quieter ! and have a young guy with severe mental health problems and alcohol abuse issues below who is constantly...
I read this article by pwme [ well some of it , it is long ] about social care. It reflects my experience.
https://www.ajourneythroughthefog.co.uk/2020/01/accessing-social-care-in-england/
What no one tells you about accessing social care in England.
ffs Cant write much , but been having so many problems with care. was told on Friday I have been transferred to another team , to carry out another care assessment. but they have a waiting list so may be a while. If this goes thru then I may not get it ? Also just read in the independent...
Andy I don't know if this is any help.wondered if it might be an idea to highlight this is some way on here.either now or later.I saw this on PR, , I rarely go there now .it was the top new post and by somebody I know. there was little interest on pr. I came here [ my usual go to first place...
I saw this on FB and having so many problems with sharing it . copying/paste etc
so I have written it out .
This was written by Marion Michell
Imagine the most hushed .unrushed procession possible
flocks of people with severe ME filling the streets.
on berths, bunks, beds...
Action4ME did a survey a few years back on social care for pwme.It wasn't specifically for severe me but I did read quite a lot of it at the time and it was pretty good and relevant to me [am severely affected ]and I was very surprised as it was action 4me
also Greg Crowhurst book caring...
HI everyone there is a feature on bbc radio five live about severe me today.with Charles shepherd ,a severe me person and also be a phone in . from 3pm. I''m severe / very severe and struggling today - so its on the me association website if any body could put up a link etc and if anyone...
The 25% me group also runs a closed facebook group. https://www.facebook.com/groups/1421378731464024 This is a safe online severe me community.
to join message Jan Johnson with a request to join the closed group.You don't have 2 be a member of the 25% group and its international - not just uk.
I ;m struggling to write at moment .severe /very severe. but wanted to highlight I started a thread last week for a the silence challenge for severe me for the 25% group
if anybody felt able to donate even one £ would be great. it is in the fundraising thing sorry :( :ill: all typed out now
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