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Silence challenge for severe ME for the 25% group. https://mydonate.bt.com/fundraisers/SilenceChallenge Amanda is completely bedbound and unable to eat or drink anything ,fed by a tube. She has lost the ability to speak and move her facial muscles.so for Severe ME day she has challenged her...

I recently joined the 25%me group closed facebook group.It is wonderful. so supportive and so many other things! I don't think you need to be a member of the 25% group to join but you have to be either housebound or bedbound. but I cant recommend it enough for any one who is severe/ very severe...

Yea a work in progress

It is up now and working - [I sent a request for something specific on there contact us form]

ITV were at the Bristol demo. Maybe on the evening news? ETA just said on Bristol missing millions facebook page that ITV have been filming for broadcast this evening

Ihavent been able to read this myself ,its an article about the debate today if I can get the link right http://www.thecanary.co/uk/2018/01/31/forget-pmqs-heres-extraordinary-debate-parliament-left-laura-pidcock-gobsmacked-video/

I put it in health news unrelated to ME.And it does affect us eg I'm having problems with social care so wil this appt help in improving things for me?

I have just heard Jeremy Hunt not only is staying as health secretary but also gets social care Please someone tell me this isn't true. maybe they should give him work and pensions too he could finish us all off in one go.

It took me a while but I have managed to do it! all I could write was a brief thank you, but I've done it. It is such a good article.

it will probably take me a few days to read it all .but from what ive read great article.Thank you @Nathalie Wright

'those with household incomes of more than £15,000 per year were less likely to experience severe symptoms than those with less than this' That is interesting.

only one Bernard now !!

1001:balloons:

my local ME support group just contacted me they put it on there page about an hour ago.I asked them to a couple of days ago.i had given upon it as there seemed to be disagreement as it was considered political!its a big group[a city]so may get a few before the card is sent.

842 signatures ...

I've just put a link on the 25%me group page

just sent him an email.if anybody else feels like doing this jeremy.corbyn.mp@parliament.uk eta if I am able to later I may see if I can put a link about the card on some of the leftie sites I sometimes hang around in. another edit!! just got a reply from my email the correct address is...

just signed eta I'm a leftie and a LP member and JC supporter so I am so bowled over by this.