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    "The way of the tired person":life rules for the perpetually exhausted. Jo Walker, Jan 27 2020, The Guardian

    existential dread is that something suffered by navel gazing idiots with to much idle time on their hands . it has never been important we exist simply by chance there are no hidden and deep reasons for our existence . imho .
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    Which computer for someone with Parkinson's Disease

    would text to speech be a better option for many as using keyboards is exhausting and painful. meant speech to text .
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    Article: Study gave me purpose when the future seemed bleak Jan 2020

    I get pem from reading too much so any kind of learning that requires re reading the same papers multiple times in an attempt to understand and remember is a no no . I have lost track of the amount of times I have given up on various papers just because it is exhausting to keep scrolling to the...
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    Article in Guardian: UK benevolent funds hand out £216m as hardship grows - features Emily Beardall (AfME) Jan 2020

    in thirty years of having m e I have only gone downhill after every crash there has been no recovery to any previous functioning . I often wonder if actual recovery is just a euphemism for feeling slightly better than before. I would prefer to be able to do more rather than just feel a bit...
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    Hearing things?

    yes when playing some console games with soundtracks that are often repeated on loop I have continued to hear the sounds for hours after turning every thing of . I think it works just like an earworm you know that irritating song that stays in your head for along time after you first hear it . I...
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    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    am I the only one who thinks being depressed is a natural response to facing the pain and disability that comes with many illnesses . the way they phrase depression as an abnormal response should tell you something about their lack of empathy or intellect you can choose what exactly is lacking .
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    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Test Your Strengths and Gaps in Knowledge Authors: Nancy Klimas, MD

    did this on med scape added to my cme points . although I am way to old sick to ever learn enough about medicine . I disliked the piece about sleep hygiene which I practiced for 14 years up in the mornings going to bed at the same time no devices in my bedroom and all that did was to leave me...
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    Comprehensive Circulatory Metabolomics in ME/CFS Reveals Disrupted Metabolism of Acyl Lipids and Steroids: Levine,Hanson et al 2020

    where did they get the 65 million figure from for the last decade the only figures I have seen where 17-25 million . considering many countries chose not to acknowledge the disease at all I don't think there will ever be an accurate figure for this
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    Quarter of Parkinson's sufferers were wrongly diagnosed, says charity

    surprised they have only a 25% figure for wrong diagnosis since the average is 36% wrong diagnoses across the board any other industry with such failure rates would of course cease to exist . you have to remember the whole medical industry came from charlatans selling hope to the desperate ...
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    Specter of possible new virus emerging from central China raises alarms across Asia, Shih and Sun - Washington Post (Jan 8, 2020)

    just sounds like space filling and fear mongering . viruses continue to evolve all the time so not recognising one immediately is common . this is why every decade or so we have a much more dangerous flu .
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    Floaters, visual snow syndrome and blurry vision

    I have had floaters since the very first day I became ill . and some visual disturbances in the first few years . now the floaters are only really noticeable when looking at white backgrounds or the sky .
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    Blog: Hilda Bastian, "5 Things We Learned About Peer Review in 2019"

    she missed out the blindingly obvious statement that peer review has blatantly failed when editors are disinterested in facts or methodology and of course their sole motive to publish is profit .
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    Medscape article: "Psychiatrist Engaged in Research Misconduct, Says Gov't Watchdog"

    white collar criminals have always got a light touch approach from justice systems . so I am not surprised imagine that sentence for some low paid employee who took thousands from their company . oh also what kind of deterrent is this to the rampant bs of our least favourite none scientists
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    Opinion piece in Nature: A toast to the error detectors

    the phrase that says science is self correcting should also contain the words eventually after the retirement or deaths of the eminent scientist who provided the original work . but saying that all knowledge starts out flawed often because the wrong questions are being asked ,or the question...
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    Solve ME/CFS Initiative's ME/ CFS Patient Registry: You + M.E.

    I do not own a mobile phone . I can get confused enough on the land line . I once spent 3 days phoning the wrong cab no . until my mum came over to see what number I was using .
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    Genome-wide analysis identifies molecular systems and 149 genetic loci associated with income, 2019, Hill et al

    it is likely the data was already there and these unusual people decided to create their less than use full paper .
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    Inflammatory modulation of exercise salience: using hormesis to return to a healthy lifestyle

    exercise has been the go to since the eighties after all it cost health services and insurance companies nothing .and if the patient cannot exercise back to good health then it is simply their fault .
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    Article: 5 Stages Experienced by Those with Chronic Illness

    yes to reiterate what rvallee said it took me ten years to finally except that M E was here to stay .also not having access to the internet back then and only poor medical advice I had absolutely no idea that my future would entail nearly twenty years of being housebound . I wonder how many...
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    Assessment and management of recurrent abdominal pain in the emergency department, 2019, Daniels et al

    milo the insurance industry in England and the conservative party is pushing for a us insurance led medical system I am reasonably sure this is happening elsewhere to .
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    Assessment and management of recurrent abdominal pain in the emergency department, 2019, Daniels et al

    do you think any of this nonsense would exist if the insurance companies were not involved in medicine in any way . medicine has always been about money in the past when only the patients paid for it no doctor would tell a paying client that the should just change the way they think about pain...
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