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    Maeve Boothby O'Neill - articles about her life, death and inquest

    This we need more than a reduction in symptoms to regain some semblance of living rather than just enduring.
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    Washington Post: Robin Warren, pathologist who rewrote the science on ulcers, dies at 87

    I wish we had more people like these two in medical research who are prepared to think for themselves and not except the path of least resistance to medical dogma. The World of medicine needs to move on from eminence based belief systems to a real understanding for quality controlled research.
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    Review Long COVID Is Not a Functional Neurologic Disorder 2024 Davenport, Tyson et al

    FND exists because neurologists cannot admit how little they know about the human brain and of course its reliance on the body.
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    Idiopathic chronic fatigue (non-ME)

    As far as i am concerned Idiopathic = the same as Mus basically the GP does not know .They really don't like to admit just how little they know about the human body considering the lack of real in depth study and research it would be foolish of any patient to expect full knowledge of every...
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    The Fear Avoidance Beliefs Questionnaire (FABQ) Does it Really Measure Fear Beliefs?, Aasdahl et al., 2020

    wasn't gordon waddell a hatchet man for the DHSS now the dept of work and pensions. patient blaming the easy way to withdraw benefits and health care .
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    David Tuller Crowdfunding starts May 1st 2024

    Ditto about a week or so ago.
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    I guess the narrative of the coroner will point to systemic failures and as usual little or nothing will be done. When their are no consequences for incompetence in medicine they will just continue with the same practices only patients end up paying via worse outcomes.
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    Intensive Pain/Exercise Programs Are Not Beneficial For Most Pots Patients, 2024, Pederson & Wilson

    sounds disgusting and controlling brainwashing parents and children into dismissing symptoms pure quackery why do tax payers have to pay for this.
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    Self-guided digital behavioural therapy versus active control for [FM] (PROSPER-FM): a phase 3, multicentre, randomised controlled trial 2024 Arnold+

    It is a polite way of patient blaming which is more expensive but saves the doctors from admitting how little they know about your illness.
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    The reason we have bad days is due to our energy use?

    Could you point to the nhs paper that says this.
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    Dianna Cowern, Physics Girl, fundraiser 2024 and other news

    Over 100k and rising. if most of those donations are from people suffering L C it is a testament to the growing problem that governments are trying to deny .
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    Do you sleep more as you become more severe?

    I wish i could have a prolonged sleep but it is very broken . I now sleep on and off through the day . today i did not get up till nine pm .I did not feel tired enough to go to bed till midday .
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    Do you sleep more as you become more severe?

    My sleep has been reversed for the last seven years since i became severe . Do not know if this is very common but have seen many reports of sleep reversal.
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    The effect of expectancy versus actual gluten intake on gastrointestinal and extra-intestinal symptoms in non-coeliac gluten..., 2024, De Graaf et al.

    I have learnt from experience some foods strongly disagree with me i had no expectations before eating said foods . after many unpleasant reactions i restricted them from my diet . simple i do not claim a specific cause/ingredient causes said symptoms because i have no real knowledge of all the...
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    Well-known, famous people with Covid-19 and Long Covid

    " It may be that there is a large psychological component in some patients. But to winged off before you have examined, must not be." this sentence says it all others could be safely thrown in the psych bin but not me . privileged behaviour indeed .
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    Review Is the effect of CBT for CFS moderated by the presence of comorbid depressive symptoms? A meta-analysis of three treatment delivery formats, 2024,Kuut

    patients who are really suffering with depression would not be engaging online with these apps. which ironically would be better for their long term health .
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    NHS: GP surgeries; privatisation; physician associates

    the replacement of gps by pa has already happened in the U S A and will happen everywhere . Doctors have left it to late to protect their own interests this is not for the best interest of patients. This subject has been mentioned on pubmed many times with older doctors recognising that they...
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