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Yes, sorry. I only saw the first part - It is heartwarming to see @mermhart book selling like hotcakes, just like my mind-body approach to ME does (see my Oxford Conference Talk). So many of the things I pioneered here in Oxford are here in this book. Miranda has is right, heal your mind and...

Michael Sharpe is gloating on Twitter about how well MH's book is selling. (I'm not going to link to him.)

The viral infection I had in August - I'm assuming FLIRT variant - gave me the worse cough I've ever had and I'm a very coughy person. I'm asthmatic, regularly have chest infections after viral infections, have had acute bronchitis several times and pneumonia. Most of the time it was a nasty...

Quotes Monica Gandhi, who's known for minimising Covid-19. Also - “Generally, if you’ve got true flu, you’re bed bound. With Covid, you might actually be quite well. Why not say - symptom severity can vary, from life-threatening or requiring hospitalisation to mild symptoms or being...

If I remember rightly, one of things Miranda Hart's messages was about giving other sufferers hope. It may sound thoughtful, but I don't think giving people unsubstantiated hope is appropriate. If she's getting better (and I hope that's true and wish her well) she's just been lucky (which she...

Too stupid at the moment to post the link, but there is an absolutely beautiful piece on #ThereforME by Maeve's best friend.

I expected a fob off, but my feeling is that the BBC sees the effects of political decisions on long term sick and disabled people as human interest stories and not political ones. Who decides what issues will dominate debate? D'oh, it's the media, of which the BBC is probably the most...

This was my level 2 complaint - My complaint concerns the then Government's intent to fund cuts to NI by cuts to disability benefits. Your response was to link to BBC Verify and some articles. This ignores my main point that the BBC failed to interrogate ministers on the impact this would have...

Reply from the BBC ECU - Thank you for your email to the Executive Complaints Unit. You complained that BBC journalists failed to question Conservative party spokesmen and women on the possible impact of proposed reforms to entitlement to disability benefits on disabled people and society as a...

Just a thought - if David Puttnam has an interest in ME, he might be able to make a TV series/film/documentary happen.

Benefits and Work have published a guide to claiming PIP for ME/CFS and a summary on their webpage...

In 2012 George Osbourne was booed when he entered the stadium and there was outrage that some Paralympians lost their benefits. I am worried that by coming second in the Paralympics (which is, of course, a tremendous achievement) the UK will be seen as supportive towards disabled and long-term...

I don't think anyone thinks pwME could safely be taking part in the Paralympics. It's troubling though that such a high profile organisation, which probably has an influence on policy, should show such ignorance in its definitions. There just doesn't seem room for nuance about...

This ignores my main point that journalists failed to interrogate ministers about the negative effects of the policy on disabled people. My initial reaction was "at least by escalating this to 1b they had pay some attention and I'll leave it there". However now I'm feeling stubborn, so I may...

I've at last had a response to my complaint to the BBC. (I failed to complain to other broadcasters.) This was the 1b stage. 1a response was tagging a piece on BBC Verify which was quite good but you wouldn't find if you weren't looking for it. To be fair I've had a lot of "apologies for taking...

Thank you for this @Joan Crawford. It took me a lot longer than 20 mins - it could have been as much as three hours in all, but it'll be shorter if you've never seen a psychologist or other therapist. I was at the end of a Covid infection, so even slower than usual. Anything to make change...

Just catching up. That's amazing and such a contrast with other organisations' behaviour. Congratulations to Trish and all involved in writing such a powerful letter, and thanks to Sonya for listening and acting.

Hmm - So, rate of being overweight is the same as the general population. Losing weight may help some non-ME LC sufferers but this isn't a healthy diet. Surely meal replacements are the epitome of ultra-processed foods, about which there's much concern. Also replacing a normal diet in this...

This seems like a positive paper. I just don't understand Greenhalgh though. Sometimes she seems to get it, but then she's so hostile to patients. I'm horrified by how she responded to you @Trish. No wonder you are upset.

All physical symptoms are signs of mental illness, but mental illness doesn't exist. Handy in getting rid of the pesky patients, but he may not have quite thought this out if he wants to hang on to his esteemed career. These musings might draw attention, and some journalists and colleagues...