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Just unbelievable and infuriating! Criminal!

Thanks @Daisymay. I'm not sure he answered that question specifically. The family study that he spoke of may throw some light on that. Not sure how anyone else views it, but I thought this presentation had a crisper more focussed note. It was interesting that he wasn't trying to group patients...

March 2018- short Q and A Ron Davis says they are working on 4 possible biomarkers. They believe something may be wrong with a central control system in the body. If this can be corrected, there may be no need for a new drug.

Thank you @Invisible Woman.

I think we may be looking at the wrong discipline to analyse this. Psychology is useless.(bold) "The goal of qualitative phenomenological research is to describe a "lived experience" of a phenomenon. As this is a qualitative analysis of narrative data, methods to analyze its data must be quite...

I wish I could commit to singing in a band, or anything. I am not reliable because of this vile illness.

@Indigophoton It's too innocent. It doesn't sound an honest picture to me .....am I being too suspicious?

@Amw66said Is this Sharpe's motive for engaging in this way? Keep us occupied while we think we are moving forward. In the meantime, their real work goes on behind the scenes.

Thank you @Robert 1973 and all the singers. It worked beautifully. A few tears as I "sat with " it today, joining in actually. Really takes you into where the losses of this illness hurt. Good Luck to @dave30th in pulling down every last shred of the BPS nonsense.

Second donation Thank you so much to the anonymous donor, and Erica Verillo's matching donation.

Sorry- Pacing with a heart rate monitor Facebook group. It's a very good site, informative files and knowledgeable participants. I am presuming that the Ketra Wooding named on the Jen Brea tweet above is the Ketra Wooding on that site. Adrienne Wooding lives in Australia and I think Ketra does...

I think Ketra Wooding is active on the HRM site, alongside her mother Adrienne. I thought they were both severe but presumably Ketra has improved. EDIT: I just started watching the video. Ketra is actually severely ill and lives in a nursing home.

Why is MS engaging in this Twitter stuff at all? What has he to gain or lose? It gives us insight into his thinking which damages him. I am amazed that he finds it of interest at all.

@janice Thank you for posting. From your knowledge does this help identify the group who might respond to antivirals?

There was a short piece earlier in the week about the BBC filming at Merryn's family home (sorry but I have forgotten her surname) for a programme on severe ME to be screened in May in ME awareness week. Are there two programmes on ME to be going out soon? @Russell Fleming

@Mattie So sorry. I am exactly the same. Cannot find anything to help. We do a 7 hour journey once a year. We stop overnight halfway. This year we are going for 3 weeks so that I can get some time without pem. Diagnosed 10 years and this problem is getting worse. All our family live at a...

Absolutely agree. Does he think patients like to spend days in bed? The trouble is....I think he does. We are .....well I'm speechless. How can he think that? These tweets are proving very illuminating.

@NelliePledge, or anyone Do you know what is happening with Dr Myhill and the petition and letters? The initial closing date was 25/3, I think. We are 3 weeks on so do we know if there has been any response from the GMC?

From what I have read and heard, junior and not so junior doctors feel very strongly about this case. I think they have or are proposing to crowdfund to pay legal fees for Dr BG. I think she was a paediatrician covering A and E as well as a paediatric ward and on her first shift, alone and...

I think in about May 2017 the Commissioner in charge of NY State primary care physicians sent a letter to all PCPs removing CBT and GET as treatments for ME/cfs. I gave my own GP here in UK a copy. It was in a letter dealing with another subject, a child health issue...