Search results

  1. Binkie4

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Yes, Thank you @Sasha I got them on the link you provided. That’s where I saw Nina Muirhead had proposed a postgrad cert in ME/cfs.
  2. Binkie4

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    I believe that those who have been turned down heard on Monday.
  3. Binkie4

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Any chance of posting them for those of us who don’t tweet? ETA: Action for ME have posted some. If you scroll down a fair way, dr Muirhead’s are there. She wants a postgraduate certificate in ME/cfs.
  4. Binkie4

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Do you know when their names will be released? Can’t help thinking these will be a very important group.
  5. Binkie4

    How to deal with Unexpected stresses

    @Hell..hath..no..fury... I take bisoprolol for high blood pressure and a heart condition. I also have tachycardia and it is really good for that. I feel calmer when my heart rate is lower. I did actually try to stop recently and change to a different bp medication but I really couldn’t manage...
  6. Binkie4

    New Album - Songs of Silence by Anette Gilje

    So beautiful @Kalliope.
  7. Binkie4

    #MEAction Scotland News

    https://www.libdems.org.uk/scotland Just looking up to see if Scottish and Westminster Libdems ally themselves in any way. @Emsho - is the above link accurate as far as you know? Many congratulations. Great news.
  8. Binkie4

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives!

    “The meeting will include #MEAction Executive Director, Jennifer Brea, #MEAction’s Director of Global Community & Campaigns, Ben HsuBorger, activists Terri Wilder and Mary Dimmock, patient and scientist, Dr. Becky Taurog, PhD, and patient and immunologist, Dr. Rochelle Joslyn, PhD” ( quote from...
  9. Binkie4

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives!

    The #MEAction statement is dated Sept 6th and gives a list of attendees headed by Jen Brea. I hope she is doing well currently and does not have to overstretch herself to attend this meeting. It is a hugely important meeting that I hope she can attend but we don’t want our advocates to become...
  10. Binkie4

    Crowdfund appeal to educate people with a duty of care towards ME patients

    http://meadvocatesireland.blogspot.com/2018/09/complaint-report-offers-hope-for-those.html I read this a couple of days ago ( have forgotten where but could it be @Keela Too?) and sent it to a family member, and have retrieved it from the email in order to post it here. I think it demonstrates...
  11. Binkie4

    ME mentioned in Sunday Times (UK) article about BBC presenter Kirsty Young's fibromyalgia

    @Jonathan Edwards Have been trying to link to the Times article without success but it is at the top of this thread https://www.theguardian.com/global/2018/sep/01/pain-rollercoaster- fibromyalgia-kirsty-young-desert-island-discs With reference to the Times, it is ill informed and gossipy...
  12. Binkie4

    ME mentioned in Sunday Times (UK) article about BBC presenter Kirsty Young's fibromyalgia

    https://www.theguardian.com/global/2018/sep/01/pain-rollercoaster-fibromyalgia-kirsty-young-desert-island-discs A very different type of article on fibromyalgia written by a patient. Just read it in the Observer:presume I missed it in the Guardian yesterday. ETA: so totally different from S...
  13. Binkie4

    Well-known, famous people with fibromyalgia

    Thank you @Trish. Had just been following this thread. Glad to see it has been picked up. I do think it needs a response.
  14. Binkie4

    Well-known, famous people with fibromyalgia

    https://www.thetimes.co.uk/article/kirsty-young-must-go-softer-on-herself-during-break-from-desert-island-discs-2pkjdbfbn This article by Sarah Baxter is on the leader page of the Times today, not as a leading article but as an opinion piece sharing the page with Dominic Lawson. It will get a...
  15. Binkie4

    Watt from MRC defends PACE in letter to Times

    https://www.thetimes.co.uk/article/male-scientists-cut-me-off-after-i-stood-up-for-staff-says-top-biologist-fiona-watt-hbksqh373 Fiona Watt is in the Times again. Good to have background on the Chair of the MRC.
  16. Binkie4

    Watt from MRC defends PACE in letter to Times

    The letter was edited by the Times, specifically the title. Will post if there is any further information on this.
  17. Binkie4

    Watt from MRC defends PACE in letter to Times

    https://en.m.wikipedia.org/wiki/Simon_Wessely ETA: would it be more accurate to say that Simon Wessely is tweeting......?
  18. Binkie4

    Watt from MRC defends PACE in letter to Times

    I have no idea what MEA will be putting in its letter to the Times but I hope it includes something to the effect that this is an inaccurate characterisation of pwme, that we are being traduced. ETA: grammar
  19. Binkie4

    Third Force News: If the government won’t take ME seriously who will?

    Didn’t we have a new member early in the summer, a doctor with ME, who was interested in tackling teaching about ME in the medical schools? She may have attended Forward ME- unsure about that.
  20. Binkie4

    Brian Hughes (2018): Psychology in Crisis

    It’s showing as that when I checked Amazon about a half hour ago. I wondered whether we had been buying so many it had caused price to drop. My logic may not be logical!
Back
Top Bottom