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Tried the link and it says the requested page can't be found.

Yes, and they don't want that looked at too carefully. Has he diverted us from actions that would have helped us more? In my view, in the light of the debate last week, yes. Now it's over, then he can afford to drop it.

My husband woke suddenly during the night on the day of the debate believing I had been cured. He was so disappointed it was only a dream...........

Thanks @strategist. An excellent strategic speech.

Ed Davey ( Libdem) was there and made the first speech after Carol's. A strong, strategic speech which hopefully will give the Dept of Health pause for thought. He was interested enough to rearrange his schedule to be there and to be briefed the day before.

Ed Davey's constituent was me. The cardiologist actually said "pwme are mad but you're not". He thought he was complimenting me. Ed was shocked. Really appreciate Ed spending an hour the evening before the debate to get to grips with it. He rearranged his diary to be able to do it so next job...

This is @Alvin quoting @dave30th . Have spent an hour with my MP this evening and given him @dave30th latest letter as well as many other briefings. He has adjusted his commitments so as to be there for as much of tomorrow as he can. As I understand it, he wil not make a speech but is...

Yes. He has another commitment but hopes to be there for part of Carol's debate. We focussed our discussion on that hopefully to some effect. I have an appointment at the Brompton tomorrow, leaving home about 2.30pm. Will this debate be recorded? I will listen to the first hour then leave...

@NelliePledge - thank you.

@NelliePledge - help -i am brainfogged to the extreme having crossed the Atlantic both ways in the last 2 weeks. Could you say a bit more about the difference between adopters and supporters ( signed in red)? I think I understand supporters but MPs as adopters? I hope to see my MP tomorrow-...

Not sure where we stand on being told to do GET in order to convince the powers that be that we have cooperated in trying to recover. I was already retired and in receipt of a pension when I became severe enough to need a diagnosis and treatments so I escaped this fate. When I was milder, I...

Just listened to episode 5, @Gary Burgess and @Trish talking. Thank you both so much for expending your precious energy on this. I think it gave a really good view of what it is like to live with ME. I agree with you about the hrm @Trish. Extra steps leads to a crash. I am surprised at how few...

Just to ask again- does anyone know who will be supporting Carol in the debate? It's 3 hours so there is a lot more time for other MPs to speak. Not sure what the format is. Anyone? She is deputy Chair of Forward for ME now. Is there support for her in the Commons from there? She had taken on a...

I have been in correspondence with Nicky Morgan and don't think she can be there. She has a royal visit to her constituency that day but "will be there in spirit." Is obviously still supporting the issue. Anyone know who will be supporting Carol in the debate? My MP, Ed Davey, has a Chair...

I have asked my MP to attend, Ed Davey. He currently has a commitment but may be able to be there for part of the time. Won't know until the day before. He is Libdem and said they would only usually be allocated one person to speak. I don't know if this is set in stone.

i agree with @Esther12 that the words " not psychological" also need to be removed from the offending sentence so that it reads "Recognise that ME is biological in line with growing international consensus" http://www.margaretwilliams.me/2018/highlights-of-prof-anthony-komaroff.pdf Prof...

@NelliePledge's above post is admirably clear. We are at the point where discussion about ME is about to go out into a wider world that has no knowledge of the historical background about disputes. Do we want to cause confusion or give a clear picture? If we aren't conveying a clear message, I...

http://www.margaretwilliams.me/2018/highlights-of-prof-anthony-komaroff.pdf I have literally only just seen this but a quick glance at page 1 is very relevant to this conversation. I am seeing my MP and will find it very hard to explain 'primarily'. Do we know why this was included? EDIT: Prof...

Would it not be easy to remedy this particular issue very simply by just omitting 'primarily' from briefing document, edition 2? Depends on what the writer of this section meant to convey I suppose. I would be happier if the word primarily was omitted.

For MOD attention https://www.s4me.info/threads/uk-tues-5-june-2-30-pm-live-on-parliament-tv-carol-monaghan-to-ask-for-debate-on-me.4435/ This thread and that with the recording of the Parliamentary clip overlap in items discussed but different S4ME members seem to be reading them. I...