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Really good article here, points out that some "long covid" symptoms began with the infection, others developed later. https://blogs.bmj.com/bmj/2020/07/10/patients-experiences-of-longcovid-are-missing-from-the-nhs-narrative/ One author - Sharon Taylor - is a liaison psychiatrist - the...

Not again! It's the same setup as Cochrane! Imagine the kick back if psychiatry had been filed under neurology rather than the other way around!

Some good studies here plus a few early surveys of patients, to add to those from @rvallee https://www.c19recoveryawareness.com/research Also check the Post-COVID-19 illness page on MEpedia (studies list and news articles). Lung damage, brain issues like encephalitis, and in rare occasions...

yes, Chalder has earned a fortune from people with ME and is a PACE study author and denialist... Malcolm Hooper's The Mental Health Movement: Persecution of Patients goes into their thinking and flawed behaviors. I felt similarly about reading CFS: The Facts by Michael Sharpe (PACE author)...

There are many issues - not just one. This is the main one - psychologization - https://www.me-pedia.org/wiki/psychologization Fundamental to the origin BPS model are the following beliefs that continue to be held despite significant evidence against them and little if not any in indication...

Anyone got the original research for this article? I searched but couldn't find it. Is it this pre-print from June doi 10.1101/2020.06.25.20137935v1 Blood parameters measured on admission as predictors of outcome for COVID-19; a prospective UK cohort study

Thank you Sasha!! Klimas ME/CFS Gene Study prelim results, spoonie version (Link to the thread on this study: Genetic Predisposition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Study 2019 Perez Nathanson Klimas et al)

The Open Medicine Foundation/Robert Phair's metabolic trap theory was based on the severely ill big data study and found IDO2 and possibly IDO1 defects which affected the tryptophan / kynurenine pathway (metabolism). Klimas's ME/CFS Gene Study at Nova Southeastern is still recruiting if you...

Klimas's team have published preliminary results showing 3 different areas, so yes - lookup the ME/CFS Gene Study

I noticed that too - awful

I couldn't find a page for ME Awareness Month on the MEA website. @Russell Fleming

Thanks for this. Where is the HLA/antigen image from? I didn't see it in the publication.

thank you @dave30th @PhysiosforME @Tom Kindlon @Caroline Struthers and all others who worked on this I notice that the similar leaflet on Trauma is totally inappropriate for PTSD - why are they not referring people to the NHS website info on PTSD? I don't have the spoons to read the other...

"People with neurological conditions have the lowest health-related quality of life of any long term condition" This refers to the Neurological study that found patients with ME/CFS (as they called it) had the lowest quality of life of any neurological illnesses. So again, downplaying, but...

I just came across this today. What's your view? I think OMF was looking into an autoimmune response causing / worsening ME, but only for a subset of patients. Some of their early statements have very limited single success eg evidence of neuroinflammation in fibromyalgia - citing a single...

Any info on charities involved? Besides ME Association and possibly ME Action. Was the Countess of Mar there, or anyone else from the House of Lords?

Ron Davis has explicitly said: do not experiment with this. Doing so can put the body into a much worse state which it may not be possible to get out of. Tryptophan - Kynurenine is not the only tryptophan pathway, and there have already been huge safety concerns leading to L-typtophan...

The meaning is not the same as the "greater than" mathematical one, it's about forward and backward direction and which alleles are equivalent to others. If you check the orientation link on SNPedia above it explains positive and negative and how the letters are paired, eg: In terms of the...

I think I'm getting there, but a few more questions: 1. are alleles T > C equivalent to C > T (ie does positive or negative matter)? 2. can chromosome number be ignored, because the chromosome number either isn't important or would always be the same? (I noticed the gene mutations didn't...

Background The metabolic trap hypothesis being investigated by the OMF is currently investigating IDO2, with the Severely Ill Big Data Project finding IDO2 mutations in the 20 patients ill with M.E. This question is about how someone can check if they have the mutations found based on genetic...