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Every time there is an election, we have the option of voting basically for two parties with stances on multiple issues, and those stances can be similar or different, depending on the issue. We only get to vote for a party - we don't get to vote on the individual issue. People don't vote on...

It was only the people's decision if the people were informed and consulted, and we weren't. People give huge amounts of money to the cancer charities, and put enormous efforts into fundraising. I think that's because those are the bits they can actually control, whereas (a) realising that...

I think that's an over-optimistic view of MPs! They aren't our mouthpieces. They're their own, and their party's. The best we can do is lobby them but we can't force them to adopt our positions and speak up on our behalf. I've never lobbied my MP about the NHS but I would if I was aware of the...

This is great - George Monbiot provided a link to DecodeME in his article today about Long Covid / ME. Are sign-ups going up, @Andy? Edit: Fixed link.

But how do we know what the public care about? The public don't have a mouthpiece, and the reporting of our views in the media is not unbiased.

So are you expecting the vaccine to reduce transmissibility from people who have been vaccinated, even if they get infected? There seems to be such doubt about this in the media.

Interesting to me because that's basically a list of my migraine triggers (though there are additional ones).

Very sorry to hear about your grandmother, @TrixieStix - that must have been a very difficult time.

Is there any move to monitor PwME who get a vaccine to see if we are particularly vulnerable to side-effects? I saw on the news yesterday that the very elderly and frail may be advised not to have it because of some adverse reactions (see here, for example). There has of course always been...

I'm trying to find a UK doctor (NHS or private) who specialises in migraines and has a special interest in the role of diet/nutraceuticals. I seem to have many dietary triggers but it seems that many migraine specialists dismiss this idea, and I want to avoid such people. Also, I want to avoid...

What exactly is it (or could it be) about this virus that would make it more transmissible? That is, what's the biology? I suddenly realise that I don't know what makes any virus more transmissible than another.

I wonder what the disjoint is that allows this crap to continue to get funded.

Always astonishes me that when considering secondary gains for patients, these people don't consider the primary losses.

Fair enough - just a bit concerned that people might not realise there's a Q&A on today.

@Andy - did you want to create a calendar entry / new thread for the webinar that's on today?

A truly astonishing lack of ME on that two-day programme.

In the UK, all I've heard about is that if someone gets a positive PCR test they have to isolate for 14 days and then that's it - they can go back to normal. But should Long Covid patients be seeking PCR testing as their symptoms continue? Particularly if those symptoms are viral and are...

But are any Long Covid patients being offered repeated PCR tests? I haven't heard of that happening, and there seems to be a huge number of such patients. And they seem to be being told by their GPs that they're no longer infectious. They're not being given the opportunity to make a judgement...

My question still stands, though - do Long Covid patients need to continue to isolate? Patients need to know how to behave to protect others.

Does that mean that patients would still be infectious?