Search results

magic cure !!! or relapsing/remitting ME. or fluctuating ME.

the Australian National Health and Medical Research Council are concluding an advisory committee on ME & CFS. Lloyd was one of the committee members, and has done some research on fatigue in Hepatitis C, but very little on ME/cfs (by his own estimate, <5% of his time). Perhaps this paper is an...

dammit, i read the title, hoped it would be sensible analysis of : does the constant barrage of negative accusations re psychological causation, further exacerbate the disease severity, and trigger psychiatric distress, by stigmatising the patients and preventing access to biomedical care &...

(waits to read the full details - and ponders the confident assumption that ONLY latent syphillis and tuberculosis need antibiotic treatment, despite the fact that some cell-wall-deficient bacteria can lurk undetected in human blood for decades, and there is no definitive & complete catalogue of...

I've noticed something, here in Australia, that might be useful globally. Sometimes medical doctors have so much "authority", and/or a reluctance to research / think / go outside the box, or a need to stay within official guidelines, that they cling firmly to the official dogma that exercise...

i'd like to see the data for the different levels of severity (Brazilian Fibromyalgia Impact Questionaire) - with small sample size, results can be skewed by 1 or 2 patients - do these subjects accurately represent patterns found in Fibromyalgia population (age, severity, duration of illness...

(off topic) is it purely the physical activity, or is it partly the interaction with your local community and built / natural environment, that decreases depression ? i'd like to see this research repeated, with wheelchair/aid dependent people. arbitrary goal of leaving the house (using...

generalised fatigue and muscular fatigue aren't the full picture. should also include separate components ofcognitive malaise (eg loss of memory, loss of language, loss of numeracy, etc), neurological malaise (autonomic nervous system chaotic, peripheral nervous system erratic), cardiovascular...

i agree re absurd assumptions about unemployment and inability to work even if this change was agreed upon (moving employment & welfare into a different govt dept) the Tories would find a new way to siphon the funds to their rich mates, while depriving everyone else

there's a link at the end of the article, for the Optimum Health Clinic website, which seem to focus on psychology (neurolinguistic programming, emotional freedom technique, CBT etc) and tailored nutrition. their 2012 research (n=138) had a 48% dropout rate at the 3 month follow up. "However...

Brandolini's law (2013): The amount of energy needed to refute bullshit is an order of magnitude bigger than to produce it.

the NDIS are very keen to avoid setting a precedent for future claims. from a local newspaper, discussing *ALL* NDIS claims (ie not just pwME): "It gets just before the court date, and they settle outside the court in order to avoid precedents,” she said. “At the last minute, the families...

@SnowLeopard - the studies you mentioned, re effects of glycogen depletion during exercise ... did anyone check for altered / lowered glycogens in the brain, that might wobble the CNS, and/or trigger a whole-body danger signal ? it might help explain why both physical exertion and mental /...

from the first paragraph: "However, in stark contrast to healthy individuals, exercise exaggerates negative symptoms in those with CFS/ME." the wording - to 'exaggerate' is to overstate, or stretch the truth. perhaps 'exacerbates symptoms' or 'aggravates symptoms' would be a little less...

(for the full story, follow the twitter link - it's worth it)

BREAKING NEWS !! In the first ever randomized clinical trial, we demonstrated that parachutes did NOT prevent death or major injury compared to control in individuals jumping from aircraft. Published today in @bmj_latest: https://www.bmj.com/content/363/bmj.k5094 … #PARACHUTETrial #XmasBMJ...

for context, Australia has a strong network of national, regional, and local support & advocacy groups. those groups allow all Australians with ME, to participate in the conversation. perhaps it would be more democratic, to allow the larger advocacy groups, who represent more than 6000...

By the way - the World Surf League interview mentions Layne Beachley, 7 times women's surf world champion, also from australia, who also experienced a form of PVFS/ME/cfs. Layne Beachley has described her illness, in books and blogs (eg...

i'm waiting for the peak-farcical moment when broken legs (and every other human injury / disease) are treated with online CBT.

i zoomed the photo - there's a blue-green (not black) line just below the yellow title box, the line has a consistent height, and left/right edges that match the text margins. the thumb-tack on the top left of the page, has a shadow inconsistent with that blue-green line being a shadow.