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I did not know it had been referred to the Law Commission. Have you any links? I did engage and participated in the in the NHS England gathering of information and I did not hold back on the reality of the situation. I have written to the Family Courts when they were debating to make the...

Also look at her research, I think FITnetNHS trial shows how parents can be blamed if no improvement

Longitudinal studies will only show the lived experence if they are recognised and data collected and the understanding of ME is known, this does not happen. When I first started to talk about PEM no one was, yet PEM is crucial to understand and opens the eyes and minds to the situation of the...

This was an old program and one in which I was loosely involved in. Sadly those that were involved were disbanded but I do know individuals still involved with supporting parents/mothers who are targeted

Yep, Government and all the rest

I am very guilty of derailing as everything intertwines and your arguments are solid and sound they just don't work for many reasons. Happy to discuss further and show why it does not work on a different thread, suffice to say that there is no collection of data or oversight for a reason.

If you follow how the disease has been presented and then follow how FII was introduced you can see the protection it gave to the many Drs that treated young people and then saw a decline in their health and why we have no figures of harm.

Another look at the MUPPETS or the FII pathway? The thing is FII is set up like a protection for the medical profession and a gatekeeping exercise. There does not have to evidence and if accused they offer a bargaining option if you agree to the accusations, which are confusing and elaborate and...

Just had a look at the SMC post about this and it was a well yes but from Your work and findings plot and map the many problems that those with ME have been explaining and living through so a huge thank you. I know you are busy but I need to ask Where do we go with the unknowns because they...

Can we sock DecodeME to them now?

No money in it, they need the narrative to enable research and treatment not to mention wellness industry and protection. This is on a different thread but the same sort of it is there but not hocus pocus...

Fluff buckets this needs a lot of unpacking and several buckets of coffee. This seems to be introducing the idea that excitement is an emotion that impacts health in a negative way. Foer those with PEM that would be correct and this is what they are working on, to hide and stop diagnosis and...

I haven't found any, the state knows what it is doing that is the problem, this is why there has been no change for decades. There are good people out there but they are targeted too

There are no words to explain the fear I feel for all our children/young adults as the Government are ensuring support to get them into education or work. BACME and their lack of understanding is going to cause unprecedented numbers of accusations and with ME A accepting or ignoring FND as...

It worked for me but will attach the word document for you here

If you read my blog from 2019 of my open letter to McFarlen https://tillymoments.blogspot.com/2019/ is open on my blog but have attached the letter sent

There is nothing anyone can do when you are accused. A mother is not allowed any defence and her evidence can and mostly does get thrown out. This may help https://bilson.org.uk/home/fii_open_letter/ Have flagged his work and Luke Clements up many times we need as a community start to engage and...

This is timely letter considering recent times. You will have to excuse me as I only know how to add the link not the letter. https://bilson.org.uk/home/fii_open_letter/

Not uncommon and should be looked at more closely. The best documented case is this one, but it is now recognised as causing mental health issues the same with war veterans an brain injury caused. They are now looking at brain injury and autoimmune it was released yesterday issue

Put all the above with this load of twaddle https://cks.nice.org.uk/topics/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me/cfs/ and we have a melting pot of the dishonesty that @Jonathan Edwards described of claiming to provide care and progress. What I see from the above is a closed...