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Six-month sequelae of post-vaccination SARS-CoV-2 infection: A retrospective cohort study of 10,024 breakthrough infections Maxime Taquet, Quentin Dercon, Paul J.Harrison Highlights Prior COVID-19 vaccination is associated with lower risk of many but not all COVID-19 sequelae. The risks of...

I have heard of some Qi Gong exercises that are done sitting down. I'm not saying I think it will help reduce ME/CFS symptoms, just passing on the info.

I just noticed that the video in the previous post also discusses a paper from 2019 that showed the benefits of oral rehydration solution (ORS). Screen shot from about 26:30 in the video That paper was discussed earlier in this older thread...

High sodium diet is also mentioned in this video from Dysautonomia International, Understanding Blood Volume & Hemodynamics in POTS (posted on April 23, 2021): https://vimeo.com/540671549 The section on salt supplementation starts at about 14:15.

I don't know if there are any studies on ME/CFS patients, but I've seen some studies on the use of high sodium diets for POTS patients. Here's one, from May 2021. Small numbers (14 POTS patients and 13 healthy controls) but it did show differences: Effect of High Dietary Sodium Intake in...

Profile of a Long Covid patient in the Washington Post: She went to one doctor, then another and another Lindsay Polega’s two-year odyssey with long covid shows how the medical system fails many patients Gift link, no paywall for 14 days: https://wapo.st/3uQCafR EDITED on April 22: I have...

Thanks, that makes a lot of sense. Holding a phone is bad for me, too! I bought my first headset back in the early 1990s, in the days of corded landlines, because my hand and arm ached after using the phone.

Solve M.E. sent an email with a short video (less than 5 minutes) about Advocacy Month. For those new to this term Advocacy Month is a yearly period of advocacy work where volunteers contact government officials to ask them to support pending legislation. This video summarizes the talking...

Do you use some sort of voice app to control it? It seems like holding your arm up to touch the screen (to scroll, click, etc) would still be difficult - but maybe your setup has the phone much lower than the diagram.

Just checked - it's also available here in the USA.

The plan for #MillionsMissing 2022 has been announced, see #MEAction website: https://millionsmissing.meaction.net/millionsmissing-2022/ There are two separate events planned: Twitter announcement:

I have not watched the video from this event (watching videos is harder for me than reading) so I can't comment on that. But I do recommend at least skimming the first few sections of the Solve ME white paper on the impact of Long Covid...

Another article about the announcement from the White House: https://www.verywellhealth.com/white-house-a-long-covid-national-research-action-plan-is-coming-5225288 Sadly, the last line shows the usual ignorance about (or distancing from?) the fact that ME/CFS happens after other types of...

Just saw this article, about a recent press release from the Long Covid Initiative [ a spin-off? or part of? the Solve M.E. Initiative ] https://finance.yahoo.com/news/long-covid-nearly-7-u-190300358.html There's an online event tomorrow, April 5, 10 am PDT, 1 pm EDT, 6 PM BST. Short notice...

I saw @Wits_End post that they could read the article just fine, no paywall. But here's a gift link (no paywall for 14 days) for anyone who is having trouble: https://wapo.st/3NRFmPY

I found this on twitter, posted by AMMES (American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society). It's dated Jan. 28, 2022, so it's a few months old. I did a search to see if it had been posted before but didn't find it. Please delete if this has already been posted or is not...

Just FYI, I found the link to this article in a tweet by Solve ME

Opening the black box: the researchers trying to find treatments for long COVID March 17, 2022 I did not read the whole thing but I noticed this section on ME/CFS:

The Latest on Long Covid Research with Dr. Iwasaki Hosted by Body Politic Mon, April 4, 2022 3:00 PM – 4:00 PM Pacific / 6:00 PM - 7:00 PM Eastern Register here - https://www.eventbrite.com/e/the-latest-on-long-covid-research-with-dr-iwasaki-tickets-308247335077 Or watch free on the Body...

Postponed, I think? Project that guarantees the treatment of fibromyalgia in the SUS postponed — Senado Notícias https://newsbeezer.com/brazileng/project-that-guarantees-the-treatment-of-fibromyalgia-in-the-sus-postponed-senado-noticias/