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OMF has posted a copy of the interview on their website: https://www.omf.ngo/jennie-jacques-in-the-news/

I have not watched the video myself so I don't know what was discussed during this webinar. But here's an excerpt from an earlier announcement...

In case it's of use here's a twitter thread from ME Association about this research paper: Quote from Dr. Shepherd: "Some of the content and referencing in this paper indicates that this research group from Verona in Italy are not used to working with ME/CFS patients and are not fully up to...

I have no personal knowledge about immunosuppression, but I can copy what Brian wrote in the second tweet on that thread: I should note that I fall into the category of 'immunosuppressed,' not 'immunocompromised.' I take methotrexate, an immunosuppressant. Transplant patients, for instance, are...

I realize that there's information in this thread saying that this CDC evidence review will not be used to develop a treatment guideline. Good news, but there's a part of me that's cynical (gee, I wonder why?) and worries that decisions like these could be reversed. So although it may be a...

The link to the Facebook post was not working when I looked. I did a search and found this on clinicaltrials.gov - I think it's the same study? https://clinicaltrials.gov/ct2/show/NCT02948556 Study uses Fukuda criteria. I also found this "companion study"...

Agreed! I was happy to see the blog post use strong terms like "institutional neglect." And this part was good - "skeptical providers who still construe these illnesses as psychogenic; insurance companies committed to denying disability benefits to the chronically ill; and, a Social Security...

Some more links for the NIH All of Us Research Program - Twitter account: https://twitter.com/AllofUsResearch/ Recent news coverage: https://kvoa.com/news/2021/07/16/national-all-of-us-covid-19-genetics-study-happening-at-banner-umc Research Projects Directory...

Here's another article about questionable research getting published. I think this article belongs on this thread but if I'm mistaken please let me know and I'll ask moderators to move it somewhere else...

Link to an HTML version of this same article: https://www.mbc.ca.gov/News/Newsletter/2021-July.aspx#4

Here's the tweet from the Medical Board of California announcing this issue: https://twitter.com/MedBoardOfCA/status/1414998595338575877

The July 2021 edition of Medical Board of California News issue includes a 2-page article called, "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID: What Every Physician Needs to Know" by MEAction. https://www.mbc.ca.gov/Download/Newsletters/Newsletter2021-July.pdf The full...

Short summary posted on the Doctors with ME website: https://doctorswith.me/stigma-and-causal-attribution-new-research/

I have one friend who told me he believed something like this. He saw a video on Facebook and warned me (this was way back in March) that getting any of the COVID vaccines would make things worse for everyone all over the world. But I think it was by a different person than the one you...

After seeing the earlier posts about "Chronic Immune Response Syndrome" and wondering what it was I stumbled across this post on twitter. Quote from an article at theathletic.com: I'm not doubting his own experiences at all. Maybe, in his case, his condition is due to some pre-existing...

I was browsing https://thedysautonomiaproject.org/ and I found this free e-book, "Principles of Autonomic Medicine" by David S. Goldstein : https://thedysautonomiaproject.org/wp-content/uploads/2020/06/Principles-of-Autonomic-Medicine-v.-3.0.pdf I have not read this book. But I did skim the...

Thanks for your link, @Snow Leopard ! I did notice the line that @Yessica quoted - "Most of the vaccinated index patients in our data set (93%) had received only the first dose of vaccine." Looking at my question again I think that this question is too broad. There may be different answers...

Does anyone have a link to a recent article or study showing that fully vaccinated people can still spread the coronavirus? I know that there are breakthrough infections (CDC has data on that for the USA, for example). But can someone who is fully vaccinated, and then gets infected, transmit...

I happened to find this recording of the WNYC 2021 Health Convening discussion from Wednesday, June 23, 2021, which discusses Long COVID and ME/CFS. https://thegreenespace.org/event/wnyc-2021-health-convening/ I have not watched this video myself (it's about 2.5 hours long). I found out...

#MEAction article from June 16: CDC releases post-COVID guidance: 4 takeaways for ME/CFS Here are the 4 takeaways listed: 1. ME/CFS is in included in the guidance 2. Long COVID patient input is making a difference 3. ME advocacy to CDC built a foundation for Long COVID 4. ME/CFS...