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@PhysiosforME in case you’ve not seen this thread

I don’t understand that @Graham there are illnesses where the treatment is months of antibiotics - TB springs to mind - 6 months of ABs.......

You can’t set it for no substitutions apparently. I think because they’re a warehouse rather than a shop they will be able to have better stock info so you can reject suggestions the day before when the order closes. you can get the driver to take away substitutes apparently or if you’ve got...

They have a broad range of stuff available. Some Waitrose soon to be replaced by M&S but also own brand and other suppliers. I can’t remember what the rules are on substitutes but i have in mind that you can’t set comments or choose no subs like on some others - might be wrong. eta...

Some fabulous purple options in the middle @Lucibee i might take you up on the offer

https://www.abc.net.au/news/2020-06-13/flu-cases-drop-amid-coronavirus-restrictions-statistics-show/12332204 Interesting article social distancing has substantially reduced flu cases compared to previous years during winter season in Australia.

Moderator note Some posts have been moved to a new thread: ‘Help for Holger’ video about a Swedish man with very severe ME

Right but it would be easy enough to contact them to ask if they agree to use by the Morten group and a lot less time consuming than creating a whole new set of stories.

Slightly confused given their links to ME Association why they are reinventing that wheel when MEA have done a lot of work on collecting people’s stories.

Yes @Ravn good point as a gradual onset PWME I had a spell of a few years where I caught every cold going I used to have to carry cough sweets round with me as I always had sore throat and cough and would have to use the losanges so I could manage to speak to colleagues. Seems quite possible...

@rvallee it appears to have been on BBC world however not the main BBC news content aimed at UK audience

The fact they were forced to start the NIH studies has saved them from looking really stupid in the face of people like Paul Garner talking about the read across. Just think what position they could have been in if they’d started five or ten years or 20 years earlier..............

Heads I win tails you loose - again

@dave30th

‘Nice’ patients v ‘nasty’ patients Good grief

Sticking my nose in From this side of the Atlantic isn’t there an ME group in Massachusetts that’s pretty good on the advocacy side? Maybe they would get involved

It must be a bit difficult for anyone with long Covid on social media - not groups open posts - when people with ME engage with them then a bunch of people with ME all want to have their Twopennorth and 57 different angles. On the other hand people need to realise they are pronouncing to the...

Interesting development. The remit of oversight organisations like ombudsmen commissioners etc isn’t necessarily set in stone. No reason why in future the role of this new commissioner couldn’t be expanded.

Ugh

thanks for updates @Andy my Brain not in gear at the moment so I’ve cancelled my booking so appreciate the opportunity to catch up later. The question I wanted to ask is about recruitment. Some areas don’t have local ME charities or Facebook support groups. I would be happy to try to...