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Don’t know about all the personalities involved. But SMC come from a group with origins (not currently) in left wing faction, the Guardian is what passes for left leaning in U.K. press. Also left leanings/intellectual side of the Guardian make it supportive of psychology which seems in the...

https://www.bbc.co.uk/news/uk-england-devon-49075253 BBC article showing that trackers are being looked at for ongoing monitoring of Parkinson’s patients Surely developments like this have to make it much harder for any further research into ME even psychological to ignore using activity...

Science Media Centre

So are these Fink-ites

Chalder AND Moss Morriss. I bow down to their combined authority and genius. Surely this must be the answer to all that ails us unhelpful believers. I shall have a word with myself and go forth and reduce my persistent symptoms

Oh dear heat induced befuddlement made me misread that - ie not didn’t register - and I had in mind the other thread about people recovering after accidents.

Odd though

Oh that’s it then we all need scaring witless by a shark and we’re going to be fine...........

Maybe try again I got a confirmation email

If I remember right Ron T mentioned something about Harvard OMF group looking at carbohydrate and fat metabolism in the IIME video I watched in last day or so. Could have got that wrong tho my concentration is poor in the hot weather

Assuming he won’t be giving a musical performance

It’s ok as petitions go. I particularly appreciate that they haven’t written pages of stuff like you see with some ME petitions.

I guess if you’re prepared you’ll be able to stop yourselves from laughing out loud ;)

If they try to use this for anything it will be deeply embarrassing. If I was an NHS manager responsible for commissioning services I would be rolling on the floor laughing hysterically if I received this as evidence of anything.

From what I’ve seen before AFME and MEA would actually most likely encourage people to say Yes with the argument whatever the service currently provides it’s better to have a specialist service than nothing specifically for ME patients as it’s easier to change something that exists than set up...

ideally this is what an OT could be helping with. Finding a supportive NHS one being the issue of course. I’m sure I’ve seen people mentioning having private OT if that’s a possibility but still needs to be supportive. Is there a local support group you could ask for advice from.

Yes @Andy thats already happened in my area. You can’t blame the NHS for getting rid of these clinics when there’s no evidence they’re effective and when you go beneath the veneer of the specialist name what they’ providing is only based on a manual that anyone doing CBT or physio could work to.

Although it’s position might actually be based on views so we can all give the bio marker article extra traffic by clicking through And definitely not click through on the exercise is helpful article

Matt Hancock has kept his role as Health Secretary Nicky Morgan is back in the Cabinet so won’t be able to be involved in backbench group working on ME anymore. Although obviously having someone who is fairly well informed about ME in the Cabinet will be useful if she is prepared to raise the...

Will be fascinating to hear how @Jonathan Edwards seminar at Queens Square goes