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And more harmful nonsense dressed up as science from Garner. See this thread: 'Long covid' and how medical information is causing illness: A philosophical issue affecting public health, 2023, Garner, Vogt

Perhaps a good starting point in reading this article would be the number of times they say: "we believe". This article is a statement of belief with a few weak cherry picked references. The reference they give (Ref 7) to an ME/CFS study of 14 people is the article on one patient who did LP...

Sadly, I think he's either a con man or someone ignorant who has been conned by a bogus US university that sells degrees. We have a thread about him: https://www.s4me.info/threads/%E2%80%9Cinspirational-story-of-victory-in-the-library-of-alexandria%E2%80%9D.32094/#post-462708

Some artlcle titles are too long for the forum software. The title has been edited.

The political angle of the 'free speech' debate is outside the scope of this forum, so I won't comment. I find it a great relief to have this forum as an online space that is not a free speech space, but is governed by rules members agree when they join, and implemented by mods with the...

:) If nothing else, I rather enjoyed trying to come up with an analogy, and playing with the idea of 'teapot-ness'.

I'm really struggling to understand this question. I've been trying to think of a way to illustrate what I mean. Try this one: A teapot is defined as: a pot with a handle, spout, and lid, in which tea is brewed and from which it is poured. The question I've quoted seems to me a bit like...

There's also the perspective of why it's useful from a patient's point of view to have an accurate diagnosis and therefore what advice the clinician should give on how to manage it. I think PEM is an essential feature for ME/CFS diagnosis, because the whole management by careful pacing, staying...

I think it's just a new name for Munchausen syndrome: a mental condition in which a person repeatedly seeks medical attention for falsified, exaggerated, or self-inflicted physical symptoms

For those on Bluesky (alternative to Twitter), I have just posted this. Please repost to help spread the word. https://bsky.app/profile/ozfish.bsky.social/post/3kcdfibriis23 Copy of post:

Thanks Kitty, that's helpful. The idea is in early stages. We won't rush it, I think.

No. PEM is mandatory because ME/CFS is a syndrome defined by a set of symptoms, not by a pathology. Therefore, by definition, someone who doesn't get PEM at all when they exert beyond a limit, and who doesn't have functionally limiting fatigue and either OI or cognitive dysfunction, does not...

I'm thinking as much about psychological, mind/body treatments that can cause immeasurable harm, such as the Lightning Process, Gupta Amygdala, neural re-whatever, etc., even CBT of the supposedly supportive kind can cause harm, as I know to my cost. I don't want to see anyone who takes...

I think we need to be careful about challenging symptoms that are included either as frequent or defining symptoms in most definitions of a syndrome. PEM is a required symptom/phenomenon in all current definitions of ME/CFS, and all defintions list OI and cognitive problems as very commonly...

I think you rather miss the point, @Creekside. Hutan's post and the thread title are about journalism, not about individuals sharing their personal experiences on blogs, forums, and other social media. Someone who earns a living from journalism, whether via payment from a media outlet or from...

Can I unembarass you by telling you I didn't either.

That's a really good letter. I hope lots of doctors read it, and especially providers of long covid and ME services. This part is particularly important: After raising the issue of POTS in LC and ME, Dr Gilbert says:

Indeed, I agree, which should lead to lots of ME research.

Off the top of my head so far: 1. A failure of process: The EiC (editor in chief) explicitly stated that the 2019 review was already outdated at the time of publication and a new review would be produced, with a time scale of two years, and regular progress reports. This has not happened. The...

Sounds good, Caroline. The more people who know and might be able to take action the better. I'm currently looking at the Cochrane complaints procedure, as I think we have several grounds for a complaint. https://www.cochranelibrary.com/help/complaints