We have a similar rule in the US. Government-funded research must be made open-access within 12 months, and in 2026, it will have to be immediately. If my tax dollars go towards research, you bet I want to be able to read it.
Transcript from your local fox:
According to Dr. Nath, they have large volumes of research to publish from the ME/CFS intramural study, which is promising. The GWI study is already going which is excellent.
It's obvious that the author doesn't understand what ME is.
If he did, he'd know that ME was also a severe disease.
This is why ME should never be referred to as chronic fatigue syndrome. It confuses everyone, even scientists. It's not tiredness. It's a devastating disease of exertion intolerance.
I'm used to viewing everyone in the ME universe as a saleman and fast-talker. If they're not blabbing for money, they might just be blabbing out of pride. Event totally honest people deceive themselves.
That's not an admission of defeat, just that the first LC treatment won't be a cure. Never is the initial version of a technology perfect and medicine is no exception. Apparently they also asked what "toxicities" patients would be able to tolerate. My answers to those questions could be...
Absolutely. There's plenty of examples of government mismanaging projects, but I think LC research is more vulnerable to this because it's not taken seriously.
No, they can't recruit from other countries because their control population is from the UK Biobank. If patients were from all over the world, the controls and patients would no longer be matched. They used the biobank so they'd only need to gather half as many samples.
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