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  1. RedFox

    EU ready to back immediate open access without author fees

    We have a similar rule in the US. Government-funded research must be made open-access within 12 months, and in 2026, it will have to be immediately. If my tax dollars go towards research, you bet I want to be able to read it.
  2. RedFox

    Low dose Naltrexone - How might it work biologically in ME/CFS?

    Tak-242 or Resatorvid is an experimental drug that, as far as I can tell, hasn't been approved anywhere.
  3. RedFox

    BBC article: Are Iranian schoolgirls being poisoned by toxic gas?, 2023 (quotes Wessely)

    Simon Wessely was more dismissive of women than the Iranian government. Let that sink in.
  4. RedFox

    New video: PEM (2 mins)

    Adam, your videos are exemplary.
  5. RedFox

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Transcript from your local fox: According to Dr. Nath, they have large volumes of research to publish from the ME/CFS intramural study, which is promising. The GWI study is already going which is excellent.
  6. RedFox

    Post-COVID—More than chronic fatigue? 2023 Ulf Seifart

    It's obvious that the author doesn't understand what ME is. If he did, he'd know that ME was also a severe disease. This is why ME should never be referred to as chronic fatigue syndrome. It confuses everyone, even scientists. It's not tiredness. It's a devastating disease of exertion intolerance.
  7. RedFox

    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    We could titrate doses while remaining blinded, at least in theory. Let people change their nominal dose but not tell them whether it's real or not.
  8. RedFox

    Research news from Bhupesh Prusty

    I'm used to viewing everyone in the ME universe as a saleman and fast-talker. If they're not blabbing for money, they might just be blabbing out of pride. Event totally honest people deceive themselves.
  9. RedFox

    Long Covid in the media and social media 2023

    That's not an admission of defeat, just that the first LC treatment won't be a cure. Never is the initial version of a technology perfect and medicine is no exception. Apparently they also asked what "toxicities" patients would be able to tolerate. My answers to those questions could be...
  10. RedFox

    Closed UK: DecodeME updates, was recruitment thread.

    Still, they're making progress. At last update, just over half were asked for samples. Thus, we're likely around 10,000 samples.
  11. RedFox

    Simmaron’s Dr. Avik Roy has won an NIH R21 grant for “ATG13: A new player in MECFS.” April 2023

    I believe this is a useful line of research because I have an interest in low-level neuroinflammation and ME.
  12. RedFox

    Long Covid is being erased —again—Ed Yong

    Those studies aren't half of pwLC. They're half of pwLC who make it to an LC clinic, making them much more likely to be severely ill.
  13. RedFox

    USA Stat News: The NIH has poured $1 billion into long Covid research — with little to show for it

    Absolutely. There's plenty of examples of government mismanaging projects, but I think LC research is more vulnerable to this because it's not taken seriously.
  14. RedFox

    Preprint medRxiv: Risk of new-onset Long Covid following reinfection with SARS-CoV-2: community-based cohort study, 2023 - Bosworth et al

    Wealthier people are more likely to have time to read about long Covid and thus understand what it is.
  15. RedFox

    Article: What happens when you don’t recover from Epstein-Barr virus?

    It's utterly disgusting that an organization that supports vaccines refuses to take post-infectious disease seriously.
  16. RedFox

    Closed UK: DecodeME updates, was recruitment thread.

    No, they can't recruit from other countries because their control population is from the UK Biobank. If patients were from all over the world, the controls and patients would no longer be matched. They used the biobank so they'd only need to gather half as many samples.
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