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Transcript: Trish Greenhalgh: Some people watching this program may be thinking, "Well...long Covid's all in the mind." I have doctors say that to me at least once a week. People say it on social media. "This is functional, this is not a physical condition." As one of the world's leading...

That implies they did a very careful job. I can't wait to read it. Sounds like there's a decent chance we'll see it this year.

They're so sad. They can't cope with the truth so they're making their own bubbles of stupidity.

Because you became potentially eligible for Childhood Disability Benefit (DAC Benefits) which you can get if you have a retired, disabled, or deceased parent.

Sorry, I had a specific meaning in mind when I said re-assessment. PIP reassessments in the UK are like starting from scratch if I understand it. But continuing disability reviews rarely kick people off unless they truly get better.

Basically all pwME and their allies say that trials without blinding or objective outcomes are worthless. Asking out of mere curiosity, there any trials of CBT in mental conditions that would meet this standard?

It's disturbing that they list premenstrual syndrome.

I'm autistic and I support biomedical research that respects autism as a difference rather than necessarily a disability. Unfortunately the research climate just isn't providing this.

We need to stop twisting the meaning of words. Medically unexplained should mean medically unexplained and functional should mean functional.

I doubt the main cause was long Covid. The CDC estimates only 7% of adults have LC, and not all of those have symptoms that limit exercise.

Many phones have text-to-speech functionality. I believe it's a default Android feature. Pull up the keyboard, tap the microphone icon, and you can dictate your texts. The voice recognition provides good results even in noise environments or if you don't enunciate every word.

The pandemic has been a "double loss" for me because I would go out more if Covid wasn't a problem. Not much more, but a little.

The outlandish ones have certainly stuck in my mind, though I certainly wouldn't try them: Garlic Drinking your own urine Black salve (applying corrosive chemicals to your skin)

Lack of positive mood is interesting. Often I enjoy doing stuff that gives me PEM. If I exercise I feel quite good during the PEM delay. Once I get PEM, there's a modest tendency to be in a moderate or bad mood. If PEM affects our moods, why? Is it the effect of PEM on the brain, simply because...

Luckily I've never been subjected to that. Once I visited someone in hospice and there were signs asking us to wear their masks, but nobody gave us a hard time. If they did, I would have left. Ironically, we were visiting someone who was potentially dying from long Covid. Her autoimmune issues...

The captions in case you don't have the time or energy to watch: It's amazing there are now people on TV criticizing the BPS model. This never would have happened without long Covid. Edit: no people -> now people. Sorry.

"Exhaustion disorder" is more like burnout than ME.

Absolutely. Many people now recognize that mental health problems are serious and can be debilitating. People with mental conditions aren't blamed for their own suffering. But the psychosomatic model says people only think they're sick because they focus on their symptoms or worry too much...

Similar article about US benefits: How Dehumanizing Administrative Burdens Harm Disabled People

We have some barriers in our disability system. When you claim SSDI (disability benefits based on your previous work record), you cannot collect benefits until 5 months after you become disabled. You have to wait 2 years after that (a total of 2 years 5 months) to get Medicare (government...