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Snakes on a plane? How about...rabbits on a tilt table!

The effect of long Covid on the digestive system is an important, yet under-researched area. While I'm not a fan of their use of the word functional, I'm otherwise pleased.

A subtle problem with ME is that it clashes with a common word, making it difficult to search for online and sometimes creating ambiguity. Recently I came across this article, with a photo of a woman holding a sign that reads, "DECLARE AN EMERGENCY FOR LONG COVID AND ME". A Google search for...

The only way to rename ME would be to hold a huge series of meeting and get buy-in from all major groups: Patient groups, specialists, and health agencies. A critical mass of people would have to commit to a new name and use it until it stuck.

She's at Mayo, which has a very bad reputation among pwME. Hopefully she will convince colleagues about the seriousness of dysautonomia and similarly neglected illnesses.

I would support any name that portrays it as serious and gains popular support. ME, SEID, Ramsay's Disease, whatever. I propose PEM syndrome because it makes no claims about the etiology and highlights its hallmark symptom, which is badly neglected.

According to a friend, PhysicsGirl has ME/CFS due to Covid. Thread here

A friend of hers has announced that YouTuber PhysicsGirl has ME/CFS due to Covid. An Update On Dianna's Health Transcript:

That's a terrible idea. ME, CFS, and all the other names refer to the same disease and everyone with ME experiences severe disability. Nobody will take ME/CFS seriously unless we call it ME, ME/CFS, or something else serious. That's why I exclusively refer to my illness as ME, lack of...

Got my zinc tested at Cleveland Clinic, it was normal.

It's not entirely unreasonable to be surprised that LC causes such a high rate of complications in young, previously healthy people. I was shocked when I learned in spring 2020 that Covid was leaving people in their 20s and 30s disabled. (I didn't know I had ME back then.) And it's good to...

We need to study the relationship between overtraining and ME/CFS.

I'm relieved they finally relented. You shouldn't need to beg doctors, consult outside specialists, post angry Twitter threads, create a change.org petition, and get the attention of national media in order to get the healthcare you need.

There's a serious risk people will resort to street drugs.

Oh good. Is that only the main study, with the WASF3 finding in a separate paper?

I told Mom that. People stopped seeing him because it doesn't work, and he may have assumed they recovered. He gave an anecdote about someone in their mid-20s who was a high-level table tennis player. He got ME, saw him, eventually completely recovered and returned to playing ping-pong even...

Autoimmune disease is famous for creating tons of vague symptoms. They're bound to score higher on symptoms people with health anxiety worry about. The "somatic symptoms scores" are clearly biased, but nobody has enough critical thinking to consider that.

Yes. Got G93.32 (ME/CFS) on my chart. He's ordering strange and specialized tests I never heard of before, which could supposedly confirm my condition. Besides the urine tests, there are blood tests. Cleveland Clinic is a notch above anything I've seen before. It shows in the little things...

C'mon, publish it!

Yesterday I visited the Cleveland Clinic for the first time. Some aspects utterly impressed me and other had me puzzled. My first appointment was with an internal medicine doctor. It started out well. I was seeing a doctor who knew what ME/CFS was for the first time in my life. He told me I...