That's a fairly middling description of ME. They vaguely reference PEM as "exhaustion", describe cognitive impairment as a psychiatric symptom, then describe depression as an ME symptom. (It's not.) I'll cut them slack because PEM-induced mood swings are real, but it's odd of them to emphasize that.
They finally corrected it by editing the title. Now it says:
25 per cent of COVID patients become ‘long haulers’ after 12 months: Mac study
Which is broadly in line with other studies.
Can we just give people with intractable chronic pain as much drugs as they want? They're in pain for heaven's sake. (That's slightly hyperbolic.) I see multiple arguments in favor of liberalizing the rules around painkillers:
Doctors/policymakers are demonstrating a basic failure to apply the...
The biggest problem I have with this study is that there's no conceivable way it will make people's lives better. It could well worsen systemic ableism by fobbing off autistic people's signs of serious illness as psychosomatic.
People with more signs of autism are more likely to report having...
I have both PTSD and ME. They're not even vaguely the same. And neurasthenia likely included many people we'd diagnose with ME, dysautonomia, or fibromyalgia today.
That's why I strongly oppose use of the term CFS.
And I agree that consumption of alcohol is strongly negatively correlated with ME. An old survey-type study seems to indicate that most people with ME/CFS drink little to none.
Ever the optimist, I find things to be hopeful for:
DecodeME!
Results from NIH RECOVER's treatment trials
Progress on the long Covid drug pipeline in general (BC-007, CT-38, gaunfacine, etc.)
The OMF's treatment trials (presumably preliminary)
I'm expecting strong results from Decode. 20k...
Their entire playlist "Long COVID Video Series - English" stands out as a succinct explanation of the aspects of long Covid that the general public has the most trouble grasping. Almost all of it is directly applicable to ME as well.
Perhaps prior infections could set someone up for getting ME later. I consider it a highly speculative possibility that Lyme disease may have led to me ME years later. This wasn't a typical case of Lyme--I ended up with permanent neurological sequelae.
Treatment was months delayed because I had...
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