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  1. RedFox

    Long COVID in Children and Adolescents A Retrospective Study in a Pediatric Cohort 2023, de Lima et al

    17.6% had long-term symptoms but only 6.6% at 24 weeks, which means most children who get long Covid recover.
  2. RedFox

    COVID-Specific Long-Term Sequelae in Comparison to Common Viral Respiratory Infections: An Analysis of 17,487 Infected Adult Patients 2022,Baskett

    That's a fairly middling description of ME. They vaguely reference PEM as "exhaustion", describe cognitive impairment as a psychiatric symptom, then describe depression as an ME symptom. (It's not.) I'll cut them slack because PEM-induced mood swings are real, but it's odd of them to emphasize that.
  3. RedFox

    Long Covid in the media and social media 2023

    They finally corrected it by editing the title. Now it says: 25 per cent of COVID patients become ‘long haulers’ after 12 months: Mac study Which is broadly in line with other studies.
  4. RedFox

    Long Covid in the media and social media 2023

    So we're just gonna give up. Nice job.
  5. RedFox

    ‘Entire Body Is Shaking’: Why Americans With Chronic Pain Are Dying, NYT [trigger warning - discusses suicide]

    Can we just give people with intractable chronic pain as much drugs as they want? They're in pain for heaven's sake. (That's slightly hyperbolic.) I see multiple arguments in favor of liberalizing the rules around painkillers: Doctors/policymakers are demonstrating a basic failure to apply the...
  6. RedFox

    Brain fog, cognitive dysfunction

    I'm in favor of that. Cognitive impairment/dysfunction or examples of things you're unable to do will be taken more seriously.
  7. RedFox

    Longitudinal relations between autistic-like features and functional somatic symptoms in adolescence 2022 Hogendoorn, Rosmalen et al

    The biggest problem I have with this study is that there's no conceivable way it will make people's lives better. It could well worsen systemic ableism by fobbing off autistic people's signs of serious illness as psychosomatic. People with more signs of autism are more likely to report having...
  8. RedFox

    Long Covid in the media and social media 2023

    I have both PTSD and ME. They're not even vaguely the same. And neurasthenia likely included many people we'd diagnose with ME, dysautonomia, or fibromyalgia today.
  9. RedFox

    Efficacy and Safety Study of Efgartigimod in Adults With Post-COVID-19 POTS (POTS)

    It's gonna be a small double-blind RCT at 42 participants. So fairly small. Hopefully a larger study will be conducted if it shows promise.
  10. RedFox

    CFS is on the MLA list of topics that must be taught to UK medical students from 2024/2025

    This seems like concrete and significant progress!
  11. RedFox

    A Description of the Current Status of Chronic Fatigue Syndrome and Associated Factors Among University Students in Wuhan, China 2022

    That's why I strongly oppose use of the term CFS. And I agree that consumption of alcohol is strongly negatively correlated with ME. An old survey-type study seems to indicate that most people with ME/CFS drink little to none.
  12. RedFox

    Long Covid in the media and social media 2023

    Sigh. Some people were banking on China taking LC seriously. That seems unlikely at least for now.
  13. RedFox

    What can PwME hope for in 2023?

    Ever the optimist, I find things to be hopeful for: DecodeME! Results from NIH RECOVER's treatment trials Progress on the long Covid drug pipeline in general (BC-007, CT-38, gaunfacine, etc.) The OMF's treatment trials (presumably preliminary) I'm expecting strong results from Decode. 20k...
  14. RedFox

    Long COVID Physio: Long COVID Video Series

    Their entire playlist "Long COVID Video Series - English" stands out as a succinct explanation of the aspects of long Covid that the general public has the most trouble grasping. Almost all of it is directly applicable to ME as well.
  15. RedFox

    Question: what do you think is a reasonable time that passes between an infection and ME/CFS onset?

    Perhaps prior infections could set someone up for getting ME later. I consider it a highly speculative possibility that Lyme disease may have led to me ME years later. This wasn't a typical case of Lyme--I ended up with permanent neurological sequelae. Treatment was months delayed because I had...
  16. RedFox

    USA: The Long COVID Alliance (set up by SOLVE)

    I think that's prudent.
  17. RedFox

    NIH Recover Initiative—petition against bogus treatments

    Signed from the US.
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