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Agreed. Using modern definitions of ME should be a requirement for research. Nobody should fund anything that uses Fukuda, etc.

Scientific papers on LTSE are lacking. It's a hard subject to research because it can be hard to tell if overdoing it was the cause, or someone just got unlucky.

That's...depressing. They haven't funded anything biomedical except DecodeME?

My mom said she's particularly angry about this sentence, because how can you actually predict that? I like that the article said that, because it's one of the few concrete claims she makes, and could well be disproved in the future. And if it is, the entire article's logic collapses like a...

A hash is when you take a bunch of data (could be text, numbers, a large computer file) and you run it through an algorithm that "scrambles" it to create a random number. The number you get will totally change if the data changes even slightly. Which means you can't tell what the input to the...

*Chucks the paper into the wastebasket*

Sounds like they're hashing your personal info

I've heard nothing good about how Australia manages ME or LC. I hope their plan involves doing something, and that it's not just talk.

I haven't pushed for a GWAS because DecodeME exists. Hope I can trust the British scientists this time ;). But seriously, we need a GWAS for long Covid. Design would have to be careful because LC isn't one disease or even one syndrome--there are multiple clusters of symptoms.

I can't believe they still use terms like this. Not understanding what's wrong is equated with nothing being wrong.

Wow, I've never seen Ron Davis speak about CBT/GET before. He doesn't talk about advocacy much, as if the idea the ME is mental illness is too absurd for him to even engage with.

6 million for a single project would allow for a large and rigorous study to reproduce previous findings.

The biggest flaw is that they're not similar at all. Subtle changes in the brain? Sure. But it just doesn't jive with things like POTS/OI, SFN, or abnormal CPET results in pwME.

I'm gonna be sad if there's a vaccine for HIV, but I'm too sick to need it because there isn't a treatment for ME. I think that's likely.

Vaccination induces HIV broadly neutralizing antibody precursors in humans https://www.science.org/doi/10.1126/science.add6502

Before reading this paper, I had no idea that blood vessels had blood vessels. The human body is amazing.

Darn it, I wish there was at least ONE aspect of ME pathology that had rock solid research, meaning replicated multiple times. I'm tired of the lack of research into a condition that's so profoundly disabling.

This is a major problem with the concept of FND. It seems to be a true clinical entity. But doctors misdiagnose a huge number of people with it, either by formally saying, "You have FND," or more commonly and indirectly, insinuations it's just anxiety.

Long Covid is distorting the labor market — and that’s bad for the U.S. economy https://www.cnbc.com/2022/12/08/long-covid-is-distorting-the-labor-market-hurting-the-us-economy.html Estimates of how many people are unable to work due to long Covid vary widely. One person they cited calculated...