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If the true reason it stopped is lack of effectiveness, not because the drug company just gave up, at least there's some closure here.

I've used the term "woozy" as a vague catch-all for feeling not myself. And how I used "tired but wired" is more about PEM than sleep issues.

Yeah. When are we gonna stop fobbing off illness as just stress? Even if stress is a factor, um, if stress gives you diarrhea or constipation you still have medical problem. And we've probably done little to figure out IBS because it's not always severe.

I received my fourth Covid shot yesterday: The Moderna Omicron booster. I've had no negative side effects beside a sore arm. Covid shots have made me feel much better for periods in the past, but it's too soon for that yet.

This is horrifying, above and beyond anything I've experienced in America. Her teeth were moving in her mouth, she was dangerously underweight because she couldn't stop vomiting, and she was so uncoordinated she couldn't cut food without hurting herself...and she was told it was psychosomatic by...

I have a similar story. I had ME for 3 years before knowing I was chronically ill. I wouldn't say I thought it was psychosomatic, but linked to my pre-existing mental conditions. Never thought about my illness much because I didn't understand how disabling it was for a long time. But if you...

I've never seen research about this. It would be hard to fund/publish because the results would shock people and be highly controversial. But imagine if we could follow a large cohort, and carefully track their symptoms and what conditions those symptoms are attributed to over time. Perhaps...

Moved from the Paul Garner thread: [I think you're talking about this article:] NHS ‘nowhere near ready’ to deliver new Alzheimer’s drug, doctors say

CNBC did an article on the economic cost of long Covid: Long Covid may be ‘the next public health disaster’ — with a $3.7 trillion economic impact rivaling the Great Recession

I have trouble communicating with doctors as well. Also, when I told one neurologist I applied for disability, he expressed doubts I'd get approved because he claimed they rarely awarded it to young people. I got approved. For autism. They decided I became disabled when I was 21. On a date...

These people have no idea what ME/CFS actually is. They're trying to say, with a straight face, that 17 percent of people working a highly strenuous job meet the IOM criteria for ME/CFS by using single questions from a questionnaire not designed to screen for ME: Rigidity of gait?! These people...

This seems to be the pattern of usage in the US. In the early 2010s, CFS was common, but this decade, ME/CFS is most common in formal contexts. Usage of just ME in the media seems rare but increasing.

Yes. The "treatment" they're giving is so useless that we can be almost certain it's a placebo (at least for physical symptoms). They basically showed how strong the placebo effect (and/or natural recovery) can be--people convinced themselves they were 22% less sick.

Hopefully it's just a brief pause. I hope the quality of upcoming will increase. The NIH study, Decode, and RECOVER treatment trials have me optimistic.

I like mindfulness and walks in nature but...can we get biomedical research so I can do it between running a business and working out instead of between light reading and taking a nap? :banghead:

I enjoy forest bathing as much as the next person, but puh-lease, this is a serious medical condition. You wouldn't write a paper this was about cancer, would you? (Unfortunately some would.) The fact that these scientists are claiming that nature therapy is a treatment for long Covid, while a...

I'm not gonna disagree with you about that. We're seeing an increasing quantity of research, but what really matters is quality. One large study with careful methodology will do more than 100 junk science papers.

A Pubmed search for "myalgic encephalomyelitis" or "chronic fatigue syndrome" brings up a little graph of results by year: 2019: 339 2020: 329 2021: 453 2022: 545 The year's not even over and 20% more papers mention ME/CFS than and previous year. But one could argue this represents increased...

Thanks for watching today's episode of "assuming the causality is in the direction that supports your hypothesis."

Wow, this paper is a smattering of every type of "natural" pseudoscience imaginable. It's basically a bingo card. Antivax, autism epidemic, aluminum, even radio waves, it's all in here. I'm impressed at the amount of effort needed to write 500+ pages of word salad.