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  1. TiredSam

    Action for M.E. hosts DWP spotlight training

    By the way, I have improved over the last 5 years, so AfME should be listening to me. I've done it by not following their advice. I've done it by doing my best to create the conditions where improvement can occur if it's going to, which means cutting back all activity you can to baseline if...
  2. TiredSam

    Action for M.E. hosts DWP spotlight training

    No apologies necessary. But this: Describes me perfectly. It leaves out PEM and all the rest of it, but what is in that description applies to me. Their advice in the leaflet about pushing boundaries is totally inappropriate, it would lead to a deterioration to moderate or severe. I've tried...
  3. TiredSam

    USA Touro Integrative Medicine Symposium - Jan 6 2019

    I read that as "integrative medicine for the undeserved". I was probably still under the influence of reading What on earth is that about?
  4. TiredSam

    Open NIH Focus Group on PEM

    Sounds like an easy job. I wonder what interested her about the National Center for Complementary and Integrative Health and their surveys.
  5. TiredSam

    Action for M.E. hosts DWP spotlight training

    Good, because it doesn't apply to people who are mild. Nope, their advice is just as fucking useless for mild sufferers. Excuse me, in my annoyance I used a word which I now regret. "useless". I should have said "catastrophically and life changingly dangerous". If they had been asked to...
  6. TiredSam

    Mum says she's 'cured' of crippling health condition [ME] thanks to dieting secret [organic food]

    This should have been the headline. In fact it should have been the whole article, and placed in the classified ads section.
  7. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Points 2 and 7 of this helpful summary by @Michiel Tack of a recent research paper: https://www.s4me.info/threads/estimating-prevalence-demographics-and-costs-of-me-cfs-using-large-scale-medical-claims-data-and-machine-learning-2018-proskauer-et-al.7279/#post-134248
  8. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Nothing our opponents would love more than to watch us bickering about the patriarchy. If Valerie Elliot Smith has an idea for an additional approach and would like to implement it, I'm sure we'd all be very grateful. And if she'd like to recruit on the basis of gender in accordance with her...
  9. TiredSam

    The Grievance Studies

    I agree Steven Pinker isn't someone worth reading. I'm unaware that they have ever claimed it was a serious scientific work, I thought they were the first to admit that it was complete rubbish. It was the journal Gender, Place, and Culture who recognised their paper about canine rape culture in...
  10. TiredSam

    Documentary on James Watson (on scientific advisory board of OMF)

    I don't know much about schizophrenia. My first thought was what it must be like for his son to hear that. It may be a perfectly reasonable opinion to have, and even to express privately, or after the son has died (which apparently he hasn't yet), but according to the linked tweets (if you click...
  11. TiredSam

    Documentary on James Watson (on scientific advisory board of OMF)

    He seems to be completely oblivious to the prejudices those with mental health issues can face from within their own family: I don't mind him taking a pot-shot at Linus Pauling though, as I have had to listen to that vitamin C nonsense from well-meaning (I think) former friends when...
  12. TiredSam

    United Kingdom: Science Media Centre (including Fiona Fox)

    Beat me to it. I shall retire to my sofa with a glass of sherry.
  13. TiredSam

    Phase III Rituximab Trial - News

    Where did you see the video? I'd like to watch it.
  14. TiredSam

    Action for ME: Our new years resolutions

    AfME setting itself a new year's resolution to "inspire" is presumptious to say the least. The only things they inspired last year were a sense of bafflement and frustration. I notice that in their "working with" resolutions, other national / international support groups are not mentioned. Their...
  15. TiredSam

    The Psychologist: "Does psychology face an exaggeration crisis?", article by Brian Hughes

    I mis-read that as That's why gratitude features heavily in Santa's happiness class :emoji_santa: Of course that had to come - practising gratitude is good for you, and if it isn't, you're doing it wrong, ie too much, or too little, or in the wrong circumstances. What we need are trained...
  16. TiredSam

    The Grievance Studies

    It's a spoof, just postmodernist text generated at random every time you load the webpage. Indistinguishable from the real thing though. If anything can be said to be real.
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