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I see PEM as a collection of symptoms instead of a single symptom, so I didn't even realize it was in the list, I just went straight for cognitive impairment. :) Anyway, out of the single symptoms, cognitive impairment is the worst for me because 1) It is one of those symptoms I always have...

This year ME/CFS Awareness Day was a little bit more in Hungary than in the past few years. First, one of my group members, Angelina Zakar created a dozen pictures with simple messages on them for 12th May to raise awareness. These were all variations of the same thing: eg. "I have ME/CFS", "my...

From the Polish ME/CFS blog written by a patient: SCIENTIFIC MEETING ON CHRONIC FATIGUE SYNDROME AT NIGRIR Google translation: NIGRiR is fully committed to preparing to work with ME/CFS patients. Therefore, on May 15 at 11:00 there will be a Scientific Meeting focused on Chronic Fatigue...

Btw, now in hindsight I wonder why Nath was so reluctant to post it on a preprint server before publication. Was it simply because they anticipated criticism/blacklash?

Yes, I remember there was a member called @Rena who was actually looking for doctors familiar with ME/CFS in Lithuania. I don't know if she still checks the forum or not but I'm tagging her just in case.

Thank you. :) There are still some minor issues with it but it is much better than the original. Here is my letter to them pointing out the problems, so if anyone is interested, they can see what these problems were in the original version (ChatGPT translation, so far from perfect): I also...

Some good news: The governmental healthcare website Egészségvonal has updated its informational page on ME/CFS (written by the National Public Health Centre) after I sent them a letter pointing out in detail how much it differs from the current literature. Although I could still find a...

An article that summarizes the 1st Interdisciplinary Consensus Meeting on post-viral conditions in Austria. Here is the Google translated version:

Hyperbaric Oxygen Therapy Conference in Hungary Context: Nikolett Szolnoki, who offers this service, has been promoting HBOT as treatment for long covid in the media for a year or two now. The conference also took place where her private clinic operates. Key points: - They are (Szolnoki et...

From March but I only discovered it today (Google translated): ME/CFS: Neurology Society invites consensus-building meetings The Austrian Society of Neurology (ÖGN) invites you to an interdisciplinary “consensus conference” on April 19th on the topic of the multisystem disease ME/CFS. The aim...

From the Polish ME/CFS website I follow: Google translation: Everything indicates that this summer (2024) we will happily see the first clinic in Poland dealing with the clinical diagnosis and management of ME/CFS as part of NIGRIR - Warsaw, Spartańska. The department is still being prepared...

It's K-pop, so Korean. I remember every once in a while we get some pretty clueless papers from Korean researchers, usually confusing ME/CFS with chronic fatigue. If she has PEM and that is why she may relapse, then maybe that can help raise some awareness of the actual disease there. Just...

I expect more to come from this team about physical rehabilitation of pwLC and the power of sports. Great blog post though. Are you going to write to the journal, @dave30th ? Sounds like it.

One of the post-covid studies funded by the Hungarian Academy of Sciences. There a few mentions of PEM:

Abstract Previous studies found that regular physical activity (PA) can lower the risk of SARS-CoV-2 (COVID-19) infection and post-COVID-19 condition (PCC), yet its specific effects in young women have not yet been investigated. Thus, we aimed to examine whether regular physical activity...

Actually, in the "Related information" section there is a PDF titled " Notice to Members". It is dated to January 2024. Maybe this is the update? It seems to be a summary. I'll copy the 2024 part here:

It says that the status has been updated. The status currently says "closed". I guess that is the update?

Just saw this on the Facebook page of the only Polish ME/CFS website I found a couple of years ago. It seemed to be dormant back then but this is today's FB post (Facebook translation): After a while, the website me-csf.pl is back! We start a big-small comeback with the discovery of a YouTube...

What is covid doing in the brain? Just recently there was an event in Hungary called the Brain Research Week, where the general public could attend talks by researchers about various brain-related topics. The effects of covid on the brain was one of these topics and the lectures of two...

They must be suffering from effort preference.