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Letters Why ME/CFS is still so poorly researched and treated Readers respond to George Monbiot’s article on the treatment and attitude of the medical profession to the debilitating condition These are the responses in the Guardian so far. Among others, you can read one from Charles Shepherd but...

George Monbiot kicks ass. Are we expecting some typical BPS style response in the Guardian? Something signed by the BPS "all-star" crew, sans HM Sir Lord Professor Simon Wessely, of course. To be honest, I kind of would like that to happen, hoping that it will give more incentive to Monbiot to...

Well, famous psychiatrist Hannibal Lecter did have his own psychiatrist even before his incarceration, so... :emoji_shrug: :joy:

Abstract Background In the Netherlands, the prevalence of post COVID-19 condition is estimated at 12.7% at 90–150 days after SARS-CoV-2 infection. This study aimed to determine the occurrence of fatigue and other symptoms, to assess how many patients meet the Myalgic Encephalomyelitis/Chronic...

Whoops, forgot to add the link, it is added now!

CDC study, mentions of ME/CFS: A substantial percentage of patients with fatigue remain ill for many months with an illness similar to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) (5), an unexplained syndrome sometimes seen after infections that is characterized by functional...

Abstract This study aimed to estimate the incidence rates of post–COVID-19 fatigue and chronic fatigue and to quantify the additional incident fatigue caused by COVID-19. We analyzed electronic health records data of 4,589 patients with confirmed COVID-19 during February 2020–February 2021 who...

Interesting, I also believe I had a sort of double infection. The first one was just some nasty cold, it gave me a cough that kept going away and coming back, it was really annoying but I kept going on with my life. Then I recovered from that and a while later EBV knocked me out and I've never...

"Unveiling hope" Oh, the irony :grumpy:

So by this logic, all the scammers out there for any disease can say their product is a cure, while also putting out a disclaimer that it is not intended as a cure and it is OK then? Is that really a reasoning the advertising authority would accept?...

So: after taking a bit better look: This is part of the ID-DarkMatter-NCD project, coordinated by Thomas Vogl from the Medical University of Vienna, Austria and the Biological Research Centre from Szeged (Hungary) is part of the project. The latter's systemic immunology research group is...

HUF 3 billion research is being launched in Szeged on the relationship between infectious and immunological diseases (Google translated article) "Among the diseases selected for detailed analysis are the post-Covid syndrome, an inflammatory autoimmune disease affecting the central nervous...

Sadly, this website doesn't seem to be working any more. It was quite useful for me as a reference when someone posted about some brain retraining type therapy and all the miraculous recoveries in my group. It was a great website! (Btw if someone is in a similar situation to me: apart from this...

Someone just explained to me in my group that you need to believe in a therapy (eg specifically this one, among many others) in order for it to work, otherwise it won't and the people who don't recover from ME/CFS are just not trying hard enough, they give up and also fail to understand the...

Do we know why they have this one-year requirement? I mean they have a control group that only gets placebo, so I don't think they are planning to attribute the effect of the drug to the potential early natural recoveries. Do they believe the condition is a lot less likely to be reversible after...

Earlier this year I posted an interview with the principal investigator, Ádám Dénes in the Visegrád regional thread, you can find it here. He is one of the researchers who got funding from the Hungarian Academy of Sciences for post-covid research.

Full title: Infection-induced vascular inflammation in COVID-19 links focal microglial dysfunction with neuropathologies through IL-1/IL-6-related systemic inflammatory states Abstract COVID-19 is associated with diverse neurological abnormalities, which predict poor outcome in patients...

Two abstracts from the 32nd International Congress of Clinical Neurophysiology (ICCN) of the IFCN, September 4-8, 2022, Geneva, Switzerland. The authors are neurologists at the National Institute of Mental Health, Neurology, and Neurosurgery, Budapest. TH-284. Dysautonomia in patients...

There have been some articles about this (I guess a press release was sent out). Here is the one from the Associated Press with some relevant quotes: The Centers for Disease Control and Prevention’s number is larger than previous studies have suggested, and is likely boosted by some of the...

Key findings Data from the National Health Interview Survey In 2021–2022, 1.3% of adults had myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The percentage of adults who had ME/CFS increased with age through ages 60–69 and then declined among those age 70 and older. White...