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Agreed. In my own sphere I've seen maybe three people who think CBT or GET helped them, all post-viral. Two had health issues only for a shorter period, so probably they just had the self-limiting post-viral version. One is a long-term patient, who swears by CBT and strongly believes that...

Oh wow. I thought there were some weird elements in the article when I read it in the morning but it is not rare to find things we don't like/agree with in articles with pwME or even some researchers sometimes, as seen here in the forum, so I assumed it was just one of those cases. o_O

ME patients: narrative, victories and challenges for people with hidden disabilities in Egypt Ayman Youssif, the first in Egypt and the Middle East to obtain a PhD in Invisible Disabilities from New York University, discusses recent achievements and aspirations for those with his condition.

From the Facebook page of the Serbian ME/CFS patient org (Facebook translation): Ladies and gentlemen, We can proudly announce that our first basic goal has been met. On our initiative with the patronage of the Ministry of Health, and with the invaluable support of the organizer of the first...

Google Translate (original): Symposium on complications following viral infections with a focus on Long COVID and ME/CFS Start of the event November 20, 2023 10:00 a.m End of the event November 20, 2023 5:30 p.m Venue Hybrid event: University of Veterinary Medicine Vienna (Veterinärplatz 1...

I have a friend who was born with dwarfism. She is tiny and her condition also affects her legs in such a way that although she can walk, she can do so with great difficulty and she is extremely slow. Not someone you can easily walk around with. She is also bisexual, Jewish and a hardcore...

Psychometric validation of the French Multidimensional Chronic Asthenia Scale (MCAS) in a sample of 621 patients with chronic fatigue Abstract Background Psychometric validation of the Multidimensional Chronic Asthenia Scale (MCAS) was conducted in order to provide an effective tool for...

I really really wouldn't be surprised. I didn't share it here I think but a couple of weeks ago I saw an abstract for a conference from pediatricians from Semmelweis University here. And it was about the children they screened at their long covid clinic. Some of these kids did end up with...

From the FB page of the Austrian ME/CFS patient org: Facebook translation: Thanks to the WE&ME Foundation, a bio bank is now being worked on at...

Just an abstract from the 14th Congress of the Hungarian Society of Human Genetics and Genomics. Google Translate:

This is the Ampligen trial they did with William Carter but this one only seems to be about HIV.

Btw, just as a "fun fact": She said this here: https://www.elsevier.com/connect/archive/transforming-rna-research-into-future-treatments-q-and-a-with-2-biotech-leaders Later, between 1985 and 1988, while working at Temple University in Philadelphia, I participated in a clinical trial in which...

I have no idea if anything about this can be found in English-language media but thought I'd share anyway. Katalin Karikó is one of the researchers (the other being Drew Weissman) who have just received the Nobel Prize for the development of the mRNA covid vaccines. She gave an interview in...

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant overlap with the post-COVID syndrome (long COVID or post-acute sequelae of COVID)...

Ehh, my blood is taken a couple of times a year because of my TSH, next time is November. Those women there are taking blood all morning every day, so now I'm going to be the weirdo of the day for them and ask if they notice anything different about my blood or not. o_O

Full title: Effects of six-month creatine supplementation on patient- and clinician-reported outcomes, and tissue creatine levels in patients with post-COVID-19 fatigue syndrome Abstract Dietary creatine has been recently put forward as a possible intervention strategy to reduce post-COVID-19...

Abstract Purpose To examine retinal and corneal neurodegenerative and retinal microvascular changes in patients after mild or asymptomatic COVID-19 disease compared to age-matched controls. Methods Thirty-five (35) patients after PCR-proven SARS-CoV-2 infection and 28 age-matched controls were...

Shared it in my group and will probably share it a few more times for visibility but I don't expect a lot of signatures. I think for a lot of people here Cochrane and this "academic debate" is a bit obscure. I tried my best to explain it though and hopefully those a bit more interested in...

Basically they retrospectively asked people treated with the therapy at their clinic about their symptoms and the results are based on their replies. No control group or anything. I just took a quick glance but I'm not sure we even know how many didn't reply, probably we don't. There may be even...

Abstract Post-COVID-19 condition, also known as long COVID-19 syndrome and post-acute sequelae of SARS-CoV-2, encompasses an array of symptoms that persist well beyond the initial phase of the viral infection. These symptoms can range in intensity, from mild and manageable to severe and...