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  1. Wyva

    Long Covid in the media and social media 2023

    Maybe it is not the same for everyone but personally I could just click on the "read the full article" button and voilá, I could read it. I think before that there was also some pop-up trying to get me to subscribe but I could just close that too.
  2. Wyva

    Long Covid in the media and social media 2023

    How learning to treat Long COVID can help those struggling with Chronic Fatigue Syndrome as well Some experts say the current crisis of Long COVID is related to our government’s neglect of similar post-acute infection chronic illnesses like ME/Chronic Fatigue Syndrome in decades past...
  3. Wyva

    Thesis Exploring overcontrolled personality traits in individuals with fibromyalgia and chronic fatigue syndrome, 2023, Horton

    For 'comedic' effect, this is what the governmental healthcare informational website says about the causes of CFS in Hungary, even today: Google translate: Written by someone who has no freaking idea of what this disease is but has read a couple of these weird chronic fatigue papers...
  4. Wyva

    ME/CFS advocacy successes in Germany

    I don't know enough about the situation in Germany either but I agree with your assumption very much that respected doctors standing up for the disease probably play a role in this. The situation seems to be similar in Austria. Their ME/CFS patient org was only founded in 2017 and look how far...
  5. Wyva

    Closed USA, Texas - Long Covid stem cell trial - Hope Biosciences

    From the Solve ME Facebook page: "Solve is hosting the =AZV71xmS5tuxd14ejqVRv50Hfl0gNSak7m1YkNOhnua-paIr1JQp5wva0YU1t1aPZh79Un0Z6G0w2pHsMLgfRNiCv0luZ3YD-WD9W8_YITMixbPIQgrjyfoW9A9Fh2VSyfMeUhKGD2_aGZhWvUZo0OFVFQSWcL3BZE6BkZgmbeqyJkMR9yc0tiGeRrdn3goK2QQT74Fcwz0DVrb-KBLn08Ew&__tn__=kK-R']Hope...
  6. Wyva

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    I also do get that sudden drop in mood when I'm in PEM. It is like a switch that gets turned on quickly when my symptoms worsen and gets turned off the same way the moment my symptoms start to ease a bit. It is very clear to me that it has nothing to do with my actual mood or personality and...
  7. Wyva

    EBV lab test

    I've just come across this paper from 2004, thought I'd share. IgM Serum Antibodies to Epstein-Barr Virus are Uniquely Present in a Subset of Patients with the Chronic Fatigue Syndrome, 2004, Lerner et al Abstract. Background: A unique subset of patients with chronic fatigue syndrome (CFS) and...
  8. Wyva

    A new consensus? - ME/CFS skeptic blog

    I think this is more of a case of Dunglish. :) Eg using expressions or words from your language (Dutch) that you assume to be the same in English. False friends are words that are very similar in two languages but have a different meaning and can be downright misleading, that's why they are...
  9. Wyva

    Unrest on YouTube

    She also posted it on her own Facebook page. It is subtitled in 28 languages.
  10. Wyva

    USA: 'Examining the Working Definition for Long COVID' consultation 2023

    Psychology Today: A Case Definition for Long COVID - Lessons from 40 years of ME/CFS research. Article by Vernita Perkins and Leonard Jason Many of the questionnaires to assess Long COVID symptoms solely measure the occurrence of symptoms, but many of the symptoms, such as fatigue, are...
  11. Wyva

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    And now the same article has also been published on the Gavi Vaccines Work website where we have already seen at least one particularly bad BPS-oriented article on ME/CFS recently.
  12. Wyva

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Yahoo: COVID fatigue: cognitive behavioural therapy could help people manage persistent symptoms – new research The same article on the Conversation. Written by Rhiannon Phillips, a health psychologist from Cardiff Metropolitan University
  13. Wyva

    Knowledge center on ME at Akureyri, Iceland

    I've made some calculations as Iceland seems to have a population of 380-390 000 people (yes, that's a lot less than the population of most European capitals). If we take the 0.5% prevalence of ME/CFS as fact, then they have around 2000 sufferers. So it is pretty good that they are setting up...
  14. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Bad title but good article (and the photo is a picture from a Millions Missing protest, not a sleepy secretary in front of her computer at work): People who get stuck in fatigue for months, years - and there is hardly any hope for change The article appeared on HVG, which is a well-known news...
  15. Wyva

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    I would be happy to have this kind of health info on an official website instead of the one that we have here, it would be an improvement indeed.
  16. Wyva

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    I agree. The reason why I stopped posting on Reddit is that even if I posted in a seemingly innocent subreddit (eg something about apartments etc) some people always showed up just to be rude and nasty, without even answering the question or helping in any way. It gets old very quickly. This...
  17. Wyva

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    BPSers are really like the hydra, aren't they? You cut one head off finally and three grow back somehow...
  18. Wyva

    USA: Cleveland Clinic

    Fibromyalgia vs. Chronic Fatigue: Which One Are You Dealing With? “Both diagnoses are sometimes called into question as to not being ‘real’ diseases,” notes Dr. Abraham. “But that’s a misconception. Chronic pain and fatigue are real, and often debilitating, for those who have it.” To get...
  19. Wyva

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    (Sorry for being off-topic but I would like to echo this. I miss his insightful comments too.)
  20. Wyva

    News from Aotearoa/New Zealand and the Pacific Islands

    I can't access this article in New Zealand Doctor, but it cannot be anything good: Lightning Process: ‘Rewiring the brain’ It seems to be about the Goodfellow Symposium that @SNT Gatchaman posted about earlier in this thread: News from Aotearoa/New Zealand and the Pacific Islands
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