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Here in Hungary you couldn't read literally anything about people being out of work long-term due to long covid until now. The media is really not that much interested in long covid here. But now a few days ago I saw an article about our healthcare system being on the brink of collapse due to a...

I just would like to draw some attention to the National Research Action Plan on Long COVID in @ahimsa's post, in case someone didn't click on the link. These are the parts about ME/CFS: From the chapter Summary of Partner Input: The text also mentions ongoing or planned LC studies in...

I've bought the article: most of it was about other, much better defined medical conditions and one paragraph was about ME/CFS. (The Wessely quote was about something unrelated.) It only said that basically due to the association with HLA alleles and certain measurable immunological differences...

I think I've mentioned it a couple of times that it is really rare here that anyone mentions ME/CFS at all in any context (and they don't mean simply chronic fatigue by it). We aren't really actively chased by psychiatrists here so much, we are just simply ignored usually and everyone is...

Axcella previews long Covid registrational trial plans for AXA1125 "Earlier this morning, Axcella announced results for a 41-patient Phase IIa trial of AXA1125 in long Covid (NCT05152849). The trial did not meet its primary endpoint of phosphocreatine (PCr) recovery rate following moderate...

Facebook is not so good at these things, especially if it's not a cookie-cutter type of example. Ads need to be preapproved for example and it is run by an algorithm/AI, people only check it if you disagree and appeal. I agree it would be better to be able to include a short message when you...

Abstract Primary Sjögren’s syndrome (pSS) is an autoimmune disease with frequent neurological involvement. Memory complaints are common, but their precise patterns remain unclear. We wanted to characterize patterns of neurocognitive profiles in pSS patients with cognitive complaints. Only pSS...

Not much, just a couple of long covid studies that got ethical approval recently in Hungary: Google translate: Title: Detection of eye movement disorders in dizzy patients after Covid-19 infection and analysis of the data with artificial intelligence Applicant: MMS One Zrt. Study leader: Dr...

"The nervous and immune systems are tightly intertwined. Deciphering their chatter might help address many brain disorders and diseases." There is a lot more in the article about the brain, neuroimmunology, microglia, sickness behaviour, Alzheimer's, MS, etc, but this is the part that caught my...

Here professor Janszky (a neurologist) keeps hinting at that. The UK Biobank found changes in areas connected to the olfactory cortex in people who had caught covid and so did he and he thinks that the affected areas in the orbitofrontal cortex might play a role in long covid somehow.

This is a joint scientific statement from the European Society of Cardiology. Some excerpts, where ME/CFS is mentioned: Treatment options:

Full title: Long COVID and the cardiovascular system – elucidating causes and cellular mechanisms in order to develop targeted diagnostic and therapeutic strategies: A joint Scientific Statement of the ESC Working Groups on Cellular Biology of the Heart and Myocardial & Pericardial Diseases...

Opinion piece by Keith Kahn-Harris. For 30 years, I tried to ‘fight’ it. In the end, I found relief in embracing my identity as a person with a disability. In my second year at university, I came down with the Epstein-Barr virus, and I expected to fully recover. Sure, I knew it would take...

I can't answer this either, I just wanted to say that I have this too. However, in my case this doesn't happen when I do something on an "OK" day. I only experience this kind of muscle burn when I overexert myself on an already bad day. This is how I'm sure this can't be the result of...

And I've also heard of fibro fog and chemo fog, so I guess some diseases had their own version even before covid.

This post has been copied to a new thread: ME/CFS co-morbidities I didn't know where to post this, but the ME Association had an online survey about common health conditions in pwME. The current result: Which of the following conditions, which are more common, or appear to be more common in...

Post copied from this thread: EDS, hypermobility, and the link, if any, to ME/CFS I didn't know where to post this, but the ME Association had an online survey about common health conditions in pwME. The current result: Which of the following conditions, which are more common, or appear to be...

I came across this article in Google News and it showed me a short part of a sentence (relevant to the keyword I used): "Another example relates to the activism of chronic fatigue syndrome (myalgic encephalomyelitis or encephalopathy) campaigners, whose fury at..." So it's probably "worth"...

From the paper: At least one diagnosis of depression, anxiety, chronic fatigue symptom (CFS), fibromyalgia, or post-traumatic stress disorder (PTSD) with new onset within the first 6, 9, or 12 months after the test was reported by 7.2% of test positives, compared to 3.3% of test negatives. The...

Abstract A considerable number of individuals infected with SARS-CoV-2 continue to experience symptoms after the acute phase. Here, we report findings from a nationwide questionnaire study in Denmark including 61,002 RT-PCR confirmed SARS-CoV-2 cases and 91,878 test-negative controls aged...