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So now I seem to have some sound sensitivity but I don't know if it is the typical ME/CFS hypersensitivity or not. I never had sound or light sensitivity before, even when I felt much worse at the beginning of my illness. In the past few years I've been getting worse and worse though and this...

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David F. Marks also commented on this, demanding the retraction of 87 of his publications: King’s College London’s enquiry into Hans J Eysenck’s ‘Unsafe’ publications must be properly completed, 2019, Marks, Buchanan Abstract This journal recently drew attention to an extensive body of highly...

Just an n=1 story but I remember seeing someone like that in the Hungarian long covid FB group. Someone with POTS kept asking her if she is sure it happens when she is in a horizontal position and not upright and she said yes, it is horizontal. She was the only such person I've seen though...

It is quite a long report from the American National Academies, you can find a summary of key points in this article: Long COVID: National Academies’ Panel Examines Long-Term Health Effects of COVID-19

Contributor(s): National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Laura Aiuppa Denning and Erin Hammers Forstag, Rapporteurs -- 'Long COVID' refers to the wide range of long-lasting symptoms experienced by some patients...

Problematic article, which aims to give a general description of the disease: https://health.usnews.com/conditions/chronic-fatigue-syndrome For example in the section about diagnosis it only mentions Fukuda and in the treatment section it says: Currently there is no cure for chronic fatigue...

(Off, but in Hungary there is a paleontologist whose name literally translates as Attila Ancient. There was also a drug programme coordinator whose name means Peter Powderbreaker. These are really rare, unique surnames, I've never heard them anywhere else and that makes this even funnier. Oh...

This article was posted on Facebook by the Serbian ME/CFS association. An interview with prof Branislav Milanovic about the disease: Google translate: What is chronic fatigue syndrome and why it cannot be cured by rest

Press release: electroCore, Inc. Announces Study of gammaCore Sapphire™ for the Treatment of Post-COVID Syndrome ROCKAWAY, N.J., July 07, 2022 (GLOBE NEWSWIRE) -- electroCore, Inc. (Nasdaq: ECOR), a commercial-stage bioelectronic medicine company, today announced Mayo Clinic is initiating an...

Oh, sad to hear that. I remember that after the mononucleosis he was asked if this was similar to depression and he clearly said it wasn't. Then someone posted an article from much later where he said something like he managed to overcome it and it sounded like he was talking about mental...

I've found a 25-minute long presentation from Dr Guth-Orji (from my previous post) on YouTube on the effects of covid on aviation safety. She talks a lot about the various sequelae of covid and that it should be taken very seriously because almost every one of these can effect a pilot's...

An abstract from the International Conference on Sports Science, coming from the Hungarian Defense Forces Medical Center, Aeromedical and Military Aptitude Research and Treatment Institute. Data based on 47 divers and parachuters with a median age of 36. Effects of COVID-19 infection on...

CC: In The Invisible Kingdom, you write that if every age has its “signature disease,” ours is the type of chronic illness that tends to go unrecognized in tests and is often viewed with skepticism by the medical establishment. This includes post-treatment Lyme disease syndrome, which you were...

The person in my group who turned out to have myasthenia gravis is convinced that she has PEM. I remember reading it in the IOM report that a lot of people with multiple sclerosis reported they had PEM. I don't know if these are really the same though or similar-sounding but different effects...

Parliamentary questions 27 June 2022 O-000026/2022 Question for oral answer O-000026/2022 to the Commission Rule 136 Pascal Arimont, Dolors Montserrat, Radan Kanev, Cindy Franssen, Sirpa Pietikäinen, Frances Fitzgerald on behalf of the PPE Group Subject: Lack of tangible results following...

The UK’s IAPT Service Is an Abject Failure By Michael Scott It is a longer article but ME/CFS and MUS in general are also mentioned: IAPT appears not to so much follow the data, but to follow funding opportunities. It has branched out into territory were angels fear to tread: Medically...