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  1. Jonathan Edwards

    Trial By Error: My Letter to Professor Chew-Graham about the Cost of MUS

    It is pure delusion. Or perhaps an alternative fact. In rheumatology I would see maybe one or two people a year who did not seem likely to have structural problems. Is there any reason to think that Dr Carson's opinion is of any interest - other than that he was a trainee of Michael Sharpe I...
  2. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Since loads of people have had Covid and loads of people have RA with flares there are going to be cases of RA after Covid and flares of RA after covid. The theorising is empty speculation based on ideas from the last century that never panned out.
  3. Jonathan Edwards

    UK - NICE guideline on Long Covid

    no flles on the admin here
  4. Jonathan Edwards

    UK - NICE guideline on Long Covid

    I look forward to seeing the document. Maybe a little prevention might not go amiss in this guideline? Or would that be too sensitive a suggestion? I note in the Guardian a virologist saying: I do not think Sage will have evidence to show that enhanced mixing is going to be beneficial in terms...
  5. Jonathan Edwards

    Medicine Journal : Chronic fatigue syndrome - Stephen Perry 2020

    Is that what the indigenous people call the Dream Time in Oz? Or just when I were a lad and 't milkman 'ad a hoss and t' papers were in black and white?
  6. Jonathan Edwards

    Why is ME/CFS getting so little research funding?

    Agree. Research into illnesses is nearly always initiated by a team led by or including a clinician. Although PWME may be surprised the reality is that most clinicians who encounter ME (like rheumatologists or GPs) have never heard of Wessely for Sharpe or the PACE trial. I had to explain about...
  7. Jonathan Edwards

    Why is ME/CFS getting so little research funding?

    I think the suggestion by the BPS crowd that researchers are put off by nasty patients is ludicrous and pathetic. I don't think anyone has been put off by that except Simon Wessely who couldn't handle reality. As a clinical researcher I wood say the reason for underfunding and lack of research...
  8. Jonathan Edwards

    A community thermoregulation experiment

    I think shivering due to cold exposure is pretty unusual for most of us. You really need to be doing waterspouts when the weather turns bad or out on a school trip with inadequate clothing to cool down enough to shiver. I guess if the central heating fails and there is a power cut and there are...
  9. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It is good to see a clinic that seems be careful. But even here - why are these people having 'light heart training'. I have taken part in all sorts of sports like skiing and sailing and walking all my life but never considered any need to undergo 'light heart training'. I just get out there and...
  10. Jonathan Edwards

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Dr V E may have a gentle way of talking but does this make any sense? If a subgroup of ME have instability (i.e. CCI) driving symptoms then presumably ME is nota misdiagnosis - because we are saying they are a subset of ME. Either instability is part of ME or it is not. It cannot be both. Does...
  11. Jonathan Edwards

    The biology of coronavirus COVID-19 - including research and treatments

    I don't think he is actually suggesting this as a possibility.He is just making up an example of what might be an unknown, unexpected effect. He could have suggested all sorts of other things, none of which we actually think is a likelihood. He is just saying that being new it might cause...
  12. Jonathan Edwards

    The biology of coronavirus COVID-19 - including research and treatments

    I think it may be the monoclonal antibody cocktail from Astrazeneca. It is not a vaccine. It is a shot of protective antibodies. A sort of high tech version of anti-tetanus serum or gamma globulin for active hepatitis. It does not produce long term immunity but provides immediate treatment for...
  13. Jonathan Edwards

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    I feel a calypso coming on... :emoji_man_dancing::emoji_dancers::emoji_drum::emoji_guitar::emoji_microphone::)
  14. Jonathan Edwards

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    It would be ironic MEAction were t send out a memorandum saying that they did not really mean all that stuff about complex disease with well proven immunological and metabolic changes and did BACME really believe it all because as far as they know scientists don't? They just know that you need...
  15. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Brian Hughes's recent blog might be relevant since it covers what is in the NICE draft and the reasons for rejecting GET.
  16. Jonathan Edwards

    "No More Mr NICE Guy…" by Prof. Brian Hughes

    What about the Daily Telegraph.
  17. Jonathan Edwards

    "No More Mr NICE Guy…" by Prof. Brian Hughes

    Did someone say ouch! It wasn't me, I promise.
  18. Jonathan Edwards

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    This simply emphasises the fact that BACME do not understand the difference between a theoretical science base and an evidence base. A theoretical science base cannot be used in the clinic unless there is an evidence base to support it IN THE CLINIC. So this statement indicates very clearly that...
  19. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I think it is quite hard to expect NICE tone this specific about commissioning. AsI understand itNICE does not deal with service provision as such. It can advise on what sort of service provision is justified but probably not on logistics. I am not sure that I see a cast iron basis for having a...
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