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Another great podcast @Gary Burgess . It was lovely to hear your voice @Trish, and to have those nuggets of experience. These are worth their weight in gold. Like you i hope biomedical research can make significant inroads for my daughter too.

My aunt had a partial.thyroidectomy in 1980. With ME her hormones were all over the place. She has been using temperature readings to titrate medication dosages and this seems to help stabilize things. Note adrenals are often overlooked and can create havoc - there dosn' t seem to be a "...

I did not know of the pain / cortisol relationship. Neither did our endocrinologist it seems as he was stumped by low base cortisol reading but ok response on ACTH test. ..

Not diagnosed - " self reported"

23 and me dosn' t cover this ( checked my aunt' s data from earlier thus year)

The EDS thought did occur, could this be simpler and be indicative of a catabolic / inflammatory predisposition?

There are very long threads in the other place re thyroid The paper published earlier this year induced low T3 state, linking to Naviaux' s dauer state is interesting. There was a thread on it i think...

I have not watched either, though i should. I do know that it has had effect when forwarded by Tymes Trust to doubting educational staff.

Sorry for duplication - i' m pretty crap at twitter ...

Video been quoted on twitter by Dr Geraghty querying recovery rates. So so poor

Iatrogenic damage to be done Comorbid treatable conditions to be disregarded Other illnesses to be written off without investigation ......

Made the pursuit of biomedical research more difficult Facilitated adoption of dubious methodology for other psych studies Where children are concerned , the combination has enabled families to be split up and iat

He has obviously had an effect- child benefit is only paid for the first two children ( unless you count the rape clause)

Day release for roughly a year and 4 days supervised training.... 2.5 times longer than being. LP provider, no medical experience required ...quality stuff

This cannot be considered in isolation. The bigger picture is very concerning in that the ICD issues with BDS/ BDD in tandem with this has the potential to embed the biopsychosocial paradigm for years to come. This is what should be what is dissected on Twitter, rather than being drawn into...

@Emsho Perhaps a perfect illustration for scottish parliament of how misunderstood this illness is and how not to do things ...

Sadly politics and money seem to be driving this forward. This is on the verge of roll out with little more than smoke and mirrors as justifucation , and many illnesses seem unaware as to how they will be affected. In a country where we struggle to provide adequate/ any support to those...