It is all very well to supply it - whether it is read is a completely different matter. Paediatrician didn't read anything, an did not engage in anything that was not a defined process, or potentially comorbid/other conditions.
My GP has a copy of both MEA book and primer, and is trying to...
I have deep reservations regarding both the route this is going and the wall of silence from charities involved. There is much at stake; this could entrench the BPS narrative for years to come.
@Russell Fleming , @Action for M.E.
Again clarification re charities' stances, proposed actions and opinions on this would be appreciated.
This looks more and more like a perfect storm
Absence is now a key performance indicator and drives pressures for attendance when unwell ( making things worse) , and involvement of social services ( even with medical notes acknowledging ME). I have know 2 families being threatened with safeguarding due to over zealous concerns re absence...
This is live event and tickets can be obtained to access and view it in Parliament
link to book tickets on this page
https://www.meaction.net/2018/06/01/scottish-action-urge-your-msp-to-support-petition-for-me/
I have shared this on parent' s groups and there are mixed views . Some are concerned re tone- it is a bit too " in your face" for them and have tweaked it. Some simply can' t rock the boat at all.
Some have had ok experiences given limited treatment options available.
The content is good ...
@Russell Fleming , @Action for M.E. - input would be a good idea . The recent turn of events does not inspire any confidence in the face of complex issues that have significant impacts for both pwme and other chronic illnesses
I do know 2 pwme whom.this helps.it is a cost benefit sum.as it is fatiguing afterwards . Both suffer from swollen lymph glands and it seems to help Not a cure more symptom relief.
This is the bit to which I was referring- related to Neural consequences of post-exertion malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.” by Edwards/ Harrison - so
so probably different research, but some aspects of outlook remain concerning.
AwolSenior Member (Voting Rights)...
This is worrying - how can a term be replaced if it does not exist in the first place? This is pretty basic and does not inspire confidence.
At a time when everyone should be singing from the same songsheet it would appear that the song is still being composed.
@Action for M.E. - can you address...
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