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    Anyone get rheumatic/arthritic type joint pain?

    Joint pain ( as well as muscular) . Wrists, shoulders, hips most affected. Trying magnesium spray for muscular pain. Joints i think may be due to sulfur issues.
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    The ME Show

    Good episode @Gary Burgess Tactfully and sensitively done- a difficult task given the subject. It is a Kafkaesque life some lead, i' m sure they will appreciate this
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    Michael Sharpe skewered by @JohntheJack on Twitter

    That' s basically what the Myhill, Booth et al papers are about- as well as stuff stuck to translocator membranes which partially block route. There is an energy score produced which has a close correlation with the Bell fatigue scale.
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    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    This illustrates the benefits of not having "experts" - when first diagnosed i was angry, now on reflection, it would simply have made things a lot worse. Following pro formas and advice frm paediatrician simply made things worse, i dread to think what a cfs/ mus clinic would have done. The...
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    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    It is so sad - the huge margin by which they simply do not get it. It would be interesting to see some stats from here- is it like Bath where if you fail to improve you are simply labelled with something else and dumped? I fear for children being " cared for" in places like this
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    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    From previous studies they always do when you carefully pick your parameters....
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    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    The IAPT programme will shift increasing numbers of long term patients into cheap therapies and enable the selling off of profitable services post Brexit There is no evidence base, the drive is political
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    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    The sole ME specialist in Scotland is a nurse.
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    New biomedical PhD funding, T cell receptors (Chris Ponting)

    Also genetics - the land of Dolly the sheep
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    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    Great news. If only UK healthcare staff watched too...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    For explore read manipulate?
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    New biomedical PhD funding, T cell receptors (Chris Ponting)

    It' s so satisfying to see biomedical research being funded by Scottish government . We have great university and biosciences expertise in Scotland which could be a huge advantage. It' s usually focused on heart diseases , diabetes and cancer , so great to see ME widening this interest (...
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    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    But will they have matching handbags and go to the loo together?
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    The ME Show

    Excellent show. I thought the shorter format worked well, it deals with issues and leaves you coming back for more. Also a good way of introducing points , enabling further updates/ detail to be explored at a later date.
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    Esther Crawley's contribution to #MEawarenessweek

    I think @dave30th may be on the case ?
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    S4ME Q&A with Prof Chris Ponting - Question Collection Thread

    Ah but there is evidence based research for LP. never mind the quality feel the width...
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    Action for ME - " Educate ME" -Scottish Campaign

    Most of the parents were fully aware of the politics involved, and I' m sure now that the commitment has been made, the parents involved will bust a gut to ensure it is fulfilled appropriately.
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    Psychogenic amnesia: syndromes, outcome, and patterns of retrograde amnesia (Harrison et al, 2017)

    In the real world the correlation with head injury and onset of brain conditions such as Alzheimers is now informing sports development programmes - football/ rugby/ boxing Sometimes I feel I am in a parallel universe....
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    Action for ME - " Educate ME" -Scottish Campaign

    Action for ME have secured funding from Scottish Government to look into and formulate proposals for improving services for those with ME in Scotland. Part of this is awareness raising- Gail Ross MSP's evening event at Scottish Parliament has helped to create interest and concern. My interest...
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