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    Cochrane review and the PACE trial

    Do we know the effect of excluding the outliers?
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    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    It will be interesting to see which of those who left choose to return.
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    PACE trial TSC and TMG minutes ordered released

    Being able to analyse FINE trial data and appreciate how to turn a null result into a positive one?
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    Esther Crawley

    I had thought this was s replication study but there are differences to the previous research from Finland. Only taking follow up to 6 months looks like it may be maximising outcomes ( again)
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    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Irony indeed given the quality of hwr recent offerings..
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    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I think things had to change given the paradigm shift that is underway. Membership within the "tent" was getting both strained and reduced concurrently. There is still a lot of woolly guff, and "biological" can be spun many ways - you only have to look at some of the recent "brain research"...
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    Esther Crawley

    https://jamanetwork.com/journals/jama/fullarticle/2320315
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    Esther Crawley

    Are we not trying to reduce antibiotic use?
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    Interviews on ME on Radio Solent

    Just caught up with this. Well done to both Emma and her mum. Unflappable and concise . I hope the school unrest screening goes well.
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    Esther Crawley

    Did the lightbulbs have any issues during manufacture/ problematic delivery? Are there colour issues? Are they the right size..did they spend too long in storage without the chance of participating in serial or parallel switching? Too many questions before they come out of the box ....
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    Esther Crawley

    CBT anyone?
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    My ME story on BBC Radio Jersey

    AYME came up as the main charity when my daughter was diagnosed. Once FITNET was launched on press i had concerns, after digging deeper i became aware of the political hot potato that ME is. What quickly became clear was that EC has no clue as to what ME is and creates merry hell in a...
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    Childhood sleep and adolescent CFS/ME: evidence of associations in a UK birth cohort (2018) Crawley et al.

    My daughter is 16 too, and shares the glandular fever onset. (we don't do serology here to know if EBV/CMV) Sleep was not an issue pre illness although the teenage shift had an impact. Now the phase has shifted by about 5 hours and " resetting" the bodyclock does not address this - it just...
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    Scotland: “Lived experience of neurological conditions” Survey

    thanks for this - I will share widely @Russell Fleming -MEA web site post @Action for M.E. - website post
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    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    Robin is active on ME Action - facebook page?
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    My ME story on BBC Radio Jersey

    I would recommend checking out the Valerie Elliot Smith files if you have not already done so. The contents explain the whole sorry state of affairs we are in today. https://valerieeliotsmith.com
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    Gary Burgess on his ME

    Nigel Speight would be excellent- someone who knows the true nature of the illness and the hell that children and families endure.
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    Dr Myhill’s complaint to GMC about PACE authors.

    Or indeed their livelihoods
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    Children's education

    I'm told that average is £1500/yr up to GCSE- it can be dependent on number of users. A levels are more restricted subject choice and priced per subject. Interhigh is similar platform but much more academic, and from other parents' experiences, a bit less understanding. Key I think is being...
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