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  1. forestglip

    Open [Remote, USA and Canada] Hydrogen Water Dosing Study for ME/CFS

    This appears to be a followup to this previous study: Trial thread: Closed - Fred Friedberg (University of Stonybrook) Hydrogen Rich Water; Heart rate variability biofeedback in CFS Paper thread: Hydrogen water and heart rate variability biofeedback as treatments for chronic fatigue syndrome...
  2. forestglip

    Open [Remote, USA and Canada] Hydrogen Water Dosing Study for ME/CFS

    Email from Open Medicine Foundation: Heart rate variability as an autonomic marker of improvement in ME/CFS in a hydrogen water treatment study Volunteers needed. ME/CFS research of a potential treatment (Hydrogen Enriched Water) and treatment biomarker (heart rate variability). New 16-week...
  3. forestglip

    Open [Remote, USA and Canada] Hydrogen Water Dosing Study for ME/CFS

    Hydrogen Water Dosing Study for ME/CFS Sponsor Stony Brook University Information provided by Fred Friedberg, Stony Brook University Detailed description Previous clinical studies (8-12 week intervention trials) have indicated that H2 enriched water reduces concentrations of markers of...
  4. forestglip

    USA: News from #MEAction

    Posting a newsletter @Peter T received: We want to share with you important behind-the-scenes work #MEAction is doing to help standardize how researchers measure post-exertional malaise (PEM) - the defining symptom of ME/CFS - in studies. Our Scientific Director, Jaime Seltzer, is a member...
  5. forestglip

    Review Systematic review of post-COVID condition in Nordic population-based registry studies, 2025, Himmels et al

    Systematic review of post-COVID condition in Nordic population-based registry studies Jan Peter William Himmels, Karin Magnusson, Kjetil Gundro Brurberg [Line breaks added] Abstract The long-term effects of COVID-19, known as post-COVID condition (PCC), are still not fully understood. This...
  6. forestglip

    What would successful brainstorming about ME/CFS genes look like?

    Any chance you can explain the difference in the three columns and why they're not the same? (RNAseq, SAGE, and microarray)
  7. forestglip

    An idea for improving research quality

    Retraction Watch: 'Noticed: Sleuths are starting to get credit for retractions' ----- 'Pseudonymous sleuth Claire Francis has flagged thousands of papers over the years, so they rarely see something new. But an email from Frontiers about an upcoming retraction on a paper Francis originally...
  8. forestglip

    News from the USA, United States of America

    I made a thread for the study here: https://www.s4me.info/threads/viral-spike-antigen-clearance-and-augmented-recovery-in-children-with-post-covid-mis-c-treated-with-larazotide-2025-yonker-et-al.45378/
  9. forestglip

    Trial Report Viral spike antigen clearance and augmented recovery in children with post-COVID [MIS-C] treated with larazotide, 2025, Yonker et al

    Viral spike antigen clearance and augmented recovery in children with post-COVID multisystem inflammatory syndrome treated with larazotide Lael M. Yonker, Abigail S. Kane, Zoe Swank, Lena Papadakis, Victoria Kenyon, Samuel Han, Rosiane Lima, Lauren B. Guthrie, Bryan Alvarez-Carcamo, Manuella...
  10. forestglip

    What Doesn't Kill You [Forthcoming Documentary]

    Really beautiful poem by James Strazza from the video above, transcribed for those that can't watch: "Everything will be okay" Rammed down my throat like Soviet propaganda. "Everything will be okay" As if life were a film and I were the lead. Privilege preached as prophecy. Luxury assumed...
  11. forestglip

    What Doesn't Kill You [Forthcoming Documentary]

    Email Newsletter (sign up to get the newsletter here): Filming the extremes From a dark room to busy streets Trent has been traveling. Camera on. He spent a couple days in South Carolina with James Strazza and Galen Warden filming their heartbreaking story. We released their teaser just...
  12. forestglip

    Well-known, famous people with ME/CFS (public thread)

    Africa Foot: 'Health Concern Forces ex-Bafana Bafana Star to Step Away from Game' 'Former Bafana Bafana goalkeeper Jethren Barr is stepping away from his football career as he’s taking a break due to illness. After a two-season spell with Irish club Drogheda United FC, Jethren Barr became a...
  13. forestglip

    Kara Jane Spencer, UK singer with severe ME

    Derbyshire Times: 'Celebrating Kara Jane’s legacy with posthumous album launch & fundraising event' 'A second album is due to be released on August 8, on ‘Severe ME Day’, to remember and celebrate the legacy of Shirebrook singer-songwriter Kara Jane Spencer, who passed away of ME/CFS aged 32 in...
  14. forestglip

    What would successful brainstorming about ME/CFS genes look like?

    Another good starting point is the ME/CFS paper you get a gene from in the first place. The authors are likely to have done at least a scan of the literature to see how the significant genes might fit into the explanation for ME/CFS. So they did a bit of the work for you, and you can check if...
  15. forestglip

    What would successful brainstorming about ME/CFS genes look like?

    I'm learning just like you. But I think just read about it and then read about it and then read about it some more and then read about things related to it and hope a connection comes to you that might just possibly make sense in the context of ME/CFS. I don't know how useful GTEx is. I just...
  16. forestglip

    Genetic Risk Factors of ME/CFS: A Critical Review. Joshua J Dibble, Simon J McGrath, Chris P Ponting. 2020

    Just finished reading this, and wanted to express that it's clear from this text that we're very lucky to have Chris Ponting at the helm of DecodeME. (Not that it wasn't clear for a variety of other reasons.) Thanks to all the authors here for doing the work to make sure the statistics get done...
  17. forestglip

    Large-scale genome-wide analyses of stuttering, 2025, Polikowsky et al

    DCC was significant in a recent ME/CFS genetic study: https://www.s4me.info/threads/neurodevelopment-genes-encoding-olduvai-domains-link-myalgic-encephalomyelitis-to-neuropsychiatric-disorders-2025-lidbury-et-al.44671/post-619252
  18. forestglip

    Large-scale genome-wide analyses of stuttering, 2025, Polikowsky et al

    Large-scale genome-wide analyses of stuttering Hannah G. Polikowsky, Alyssa C. Scartozzi, Douglas M. Shaw, Dillon G. Pruett, Hung-Hsin Chen, Lauren E. Petty, Alexander S. Petty, Emily J. Lowther, Shu-Hsien Cho, Yao Yu, 23andMe Research Team, Sahar Mozaffari, Christy L. Avery, Kathleen Mullan...
  19. forestglip

    Trial Report The Psychological Benefits of Forest Bathing in Individuals with Fibromyalgia and CFS/ME: A Pilot Study, 2023, Serrat et al

    Now published: The Psychological Benefits of Forest Bathing in Individuals with Fibromyalgia and Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A Pilot Study Mayte Serrat, Estíbaliz Royuela-Colomer, Sandra Alonso-Marsol, Sònia Ferrés, Ruben Nieto, Albert Feliu-Soler, Anna Muro...
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