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Do these Drs realise that they’re exposing their own somewhat basic personal take on something they don’t even understand? Clearly not. This type of behaviour says a lot about them, more than it says about patients.

For posterity - screen grab

I think they mine it in London and it costs a lot to post it:rofl:

Yeah that’s the usual fix in these situations. I’m already reeling from the cost difference up north. In London my water was discounted and my council tax discount was 100%. Up here I have no water discount, electric is more expensive per unit (I have no idea why, it’s very windy, they need a...

Urgh I just read the thread, there were a lot of people saying “ well yes because you only have that if your gut is beyond saving…” it’s amazing how many people seem to think the very real proven outcome of “death” is fine when balanced against using a last-chance measure like TPN. You’d think...

Yeah…it’s nothing to do with immigration it’s just a system with a “squeezed middle” as most systems develop over time.

So why do people who are immigrants get it? They’re just the same as people who didn’t have enough credits/years paid in? I’m really confused. I worked offshore for some years and made sure I had enough years paid in. If I settled here from abroad as an adult immigrant then I wouldn’t have...

So people who don’t have enough NI years get pension credit?

Neurologist practicing in the NHS! Eek. https://www.uclh.nhs.uk/our-services/find-consultant/dr-suzanne-osullivan

I don’t understand why a recent immigrant gets a pension credit top up equivalent to PIP with associated passported benefits?

I feel like there’s a meme for this? You keep using that word. I do not think it means what you think it means! A film quote which shows a deeper understanding and insight than the good Dr. The Princess Bride

Not a fan of the logo or colours, however having experience in charities I can imagine it ticks a lot of boxes. I am personally creating a fantasy in my mind, entirely made up, that they want to get their house in order pending a big reveal by Decode ME later this year….I can dream

I love this idea. I think it’s workable. You could find people with similar levels of ME, similar home circumstances, age sex etc so that the group are homogeneous . It’s at home so big tick there. And deteriorating to the point of having to drop out tells us something, too, if you actually...

Cant we just do a literature review, but one which w cherry pick and doesn’t even back up our assertion about the BPS deep need to be correct in the face of evidence that they’re not? Or shall we just view it through the lens of DARVO and abuse and coercion?

I’m aware that these are the rules, but as I said I had free expert advice (after a long tribunal process I still got 2s, despite extensive evidence and reference to their rules, that I don’t need any assistance to do anything at any point in the day). I’m now going to waste everyone’s time by...

I got a bit of free expert advice and they said my ADLs at 2s were about all you’d expect for someone who doesn’t have any carers or OT type assistance, and with no serious (documented by consultant report etc) mental health issues. I think I will push for a Care Assessment (the LA told me I...

I don’t think it’s that expensive. If they update every 10 years then it’s £4,300k per year.

Revamped new website is live.

I feel like the BPS doublespeak type of nonsense has spread to other parts of life.

Feeling a bit freaked out to be honest. I’d be looking at losing 40% of my current income. Honestly I feel like I want a PIP assessment where I will spend the days beforehand absolutely overdoing it, so they can see what happens if I don’t rest. They don’t understand it in writing so I’ll have...