Search results

  1. MrMagoo

    United Kingdom: ME Association governance issues

    They said at the agm that they were setting up a working party or something. I think they tried to frame it as “well, we heard there was some concern so we are taking it seriously and looking into it properly” when of course, the actual issue isn’t whether people should move, or not, but whether...
  2. MrMagoo

    United Kingdom: ME Association governance issues

    The agm seemed to demonstrate that there is wider agreement with Riley. Look at the “we must investigate whether movement is useful” project being set up (to validate Neil’s article) the poor comms on the date of the agm, hour long trustee introductions….
  3. MrMagoo

    Involuntary movements: Seizures, tremors, tics, twitches, myoclonus

    Yeah I wig out when I’m ill, overwrought, overtired etc arms or legs just fire out. I thought it took more effort to keep them still and that was why? Anyhoo well done for being the bigger person @Trish they don’t deserve you. [refers to Trish's open letter to the MEA, which was the topic of...
  4. MrMagoo

    United Kingdom: ME Association governance issues

    Just compare it with Sonya Choudhury’s response to the 24 page “DIY care plan”. It’s not just that she withdrew it from the website, her manner and way of engaging with the community was so respectful, understanding and we felt heard and understood. Contrast with “get up and move/ I’m in charge...
  5. MrMagoo

    Should we change our name: 'ME/CFS Skeptic'?

    Yes I have suggested to change it before. I’ve seen people on socials react really badly to the name - the community need things to be straightforward, not “double speak” we have enough of that with the likes of “pacing up”.
  6. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Bobbins Also small study that wants a larger study <500 people for <2 months, 35% drop out rate, this is the best he’s got?
  7. MrMagoo

    United Kingdom: ME Association governance issues

    The advantage I have is that I can’t really follow the ins and outs. also ascribing motives and retconning that parts of documents were copy pasted etc are allegations and theories. These are not the same as facts, and it’s the facts which require CC investigation.
  8. MrMagoo

    United Kingdom: ME Association governance issues

    It is an explainer specifically a “two sentence summation” was requested.
  9. MrMagoo

    United Kingdom: ME Association governance issues

    The MEA should already have notified the Charity Commission that there has been an incident. Others should notify the CC that MEA hasn’t been operating as it should, and ask them to investigate.
  10. MrMagoo

    United Kingdom: ME Association governance issues

    It’s unclear which AoA’s were drafted in 2013 and which were adopted in 2014 there’s about three versions in play. TL:DR the MEa should have asked permission from the Charity Commission to pay trustees it awarded contracts to. It didn’t do so, claiming it didn’t need to citing various AoAs -...
  11. MrMagoo

    United Kingdom: ME Association governance issues

    I really don’t mind if it’s incompetence or corruption, it’s for the Charities Commission to work out. Amendments agreed at meetings held illegally don’t hold anyway, so for NR’s sake let’s hope he can prove appropriate notice was given in 2014 for the AGM. It wasn’t in 2024.
  12. MrMagoo

    BPS/Psychosomatic Theories and Sexism, discussion thread

    Fascinating. I’d like to think also about the intersection with capitalism but my brain isn’t playing.
  13. MrMagoo

    United Kingdom: ME Association governance issues

    I think the CC needs to be informed of all of the issues, which includes the “movement” article, the non-apology, the “I am Complaints Officer” article, the attempts to add the motion to the AGM by Nic? The ultimate refusal to do so, the format of the AGM, the emails to P White and threatening...
  14. MrMagoo

    United Kingdom: ME Association governance issues

    I’m going to dump some ideas, then elaborate a bit later Link - The Essential Trustee, what you need to do. Guidance by Charity Commission. https://www.gov.uk/government/publications/the-essential-trustee-what-you-need-to-know-cc3/the-essential-trustee-what-you-need-to-know-what-you-need-to-do...
  15. MrMagoo

    United Kingdom: ME Association governance issues

    I would just take the whole sorry tale to the Charities Commission and let them look into it.
  16. MrMagoo

    United Kingdom: ME Association governance issues

    Because they haven’t a clue what they’re doing. Hope that helps.
  17. MrMagoo

    United Kingdom: ME Association governance issues

    This is undated in the FAQ’s the FAQs also contain hyperlinks to the AOAs (version I saw had the “permission of CC” included 28 c
  18. MrMagoo

    United Kingdom: ME Association governance issues

    Ah so Martine is the only person I can see who works in Ainsworth and Wells, and she has a PR background but her company was used to do campaigning work, and it was at arms length. She’s the director and the only shareholder. And in 2014 and 2015 her company had only debts showing on their...
Back
Top Bottom