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  1. Simbindi

    ME/CFS in UK medical textbooks (Psychiatry)

    What's concerning is that this is the material that is being fed to (UK) medical students. Following the links from J Price's web page, I came across the following (2016) articles in the journal 'Medicine' - the first on 'Medically Unexplained Symptoms' by Price, immediately followed by an...
  2. Simbindi

    ME/CFS in UK medical textbooks (Psychiatry)

    This guy: https://www.neuroscience.ox.ac.uk/research-directory/jonathan-price Looking through his list of publications, it appears so.
  3. Simbindi

    ME/CFS in UK medical textbooks (Psychiatry)

    I have been going through my old books from the loft and came across one on Psychiatry (bought at the time I was deciding on whether to go for an autism diagnostic assessment, rather than to look up what it contained on M.E.). So for the first time, before putting it aside on my 'to sell' pile...
  4. Simbindi

    ME/CFS services in the United Kingdom

    I suspect it's been set up by a carer (or small group of carers) to maximise their social care/NHS Continuing Care Personal Budget. They don't seem to be active in looking for new clients.
  5. Simbindi

    ME/CFS services in the United Kingdom

    Taunton's my nearest main town and I've never heard of them!
  6. Simbindi

    Science minded people--help me engineer a simple structure to stay warm?

    Regarding acquiring warm but cheaper clothing, I'm not sure if you have the equivalent of 'Army surplus' stores in the USA? Here in the UK there are often much cheaper options than buying expensive gear from specialist camping stores, with highly inflated prices. For example, extra warm sleeping...
  7. Simbindi

    Science minded people--help me engineer a simple structure to stay warm?

    Oh yes, I also used to wear my Icelandic knitted jumpers, handmade by my mum the traditional way with genuine Icelandic wool!
  8. Simbindi

    Science minded people--help me engineer a simple structure to stay warm?

    I'm in the UK, so I'm not sure what the above items are called in the US. Here we would call the first an 'emergency foil blanket' and the second is an example of 'Airtech' double layer bubble foil insulation, which is effective for both insulation against heat loss (keeping a room warm in...
  9. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    I'm currently helping someone try to get a home assessment (called a DV in the DWP guidance) for his ESA. The parliamentary enquiry above got Maximus to reveal they agree this in less than 1% of face to face assessments. Their argument is that if someone has needs that require a home visit it is...
  10. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    I don't have time at the moment to give a summary, but here is a link to some useful information given to a parliamentary select committee [Edit: correct link inserted]: https://publications.parliament.uk/pa/cm201719/cmselect/cmworpen/829/82902.htm There are more links if you click on the...
  11. Simbindi

    Personality and social attitudes in Chronic Fatigue Syndrome (1999) Wood and Wessely.

    Looks like she was doing her psychiatry training at that time, in the Maudsley hospital: https://www.national.slam.nhs.uk/about-us/our-experts/barbarawood/
  12. Simbindi

    "Body Reprogramming: Patient guide for recovery using the Hyland model"

    So the Pain Clinic is now where you go to have pain inflicted on you. I suppose it's in fitting with the name. Are we now living in The Upside Down?
  13. Simbindi

    Secret medical recordings ‘reprehensible’ but allowed as evidence

    See the below link for the General Medical Council's guidance on this: https://www.gmc-uk.org/ethical-guidance/ethical-guidance-for-doctors/making-and-using-visual-and-audio-recordings-of-patients
  14. Simbindi

    Guardian: [UK] Government forced into U-turn over disability benefits for chronically ill

    This is the old one used for DLA/AA: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/537346/a-z-adult-medical-conditions.pdf For ESA and PIP each assessment company (Maximus, ATOS and Capita produce their own guides for some of the more common...
  15. Simbindi

    Guardian: [UK] Government forced into U-turn over disability benefits for chronically ill

    This is (was) only one of a large number of assumptions the DWP manuals 'coach' the ATOS, Maximus, and Capaita health care assessors, as well as their own 'Decision Makers', to make about claimants. To get the full picture you have to read through the original DWP guidance (their published...
  16. Simbindi

    "Positive Health Statement" - Job Centre Plus

    I had what was probably PVFS after getting glandular fever when I was in lower sixth (age 16-17) back in 1982/3, and this continued for a couple of years wrecking my 'A' level studies, even with an additional year of college. That is why I could tell how different it was after I got the severe...
  17. Simbindi

    "Positive Health Statement" - Job Centre Plus

    I think that must be the 'FITNET' trial, discussed on various threads on the forum. It may be that some of the children who 'recovered' have idiopathic fatigue, certainly not ME or CFS with PEM.
  18. Simbindi

    "Positive Health Statement" - Job Centre Plus

    So the advice started within the local NHS 'pain service' and then was taken onboard by the local Job Centre, rather than being a national DWP initiative. This just shows how divorced from reality the NHS is becoming with regards to how severely these medical conditions (depression, chronic...
  19. Simbindi

    "Positive Health Statement" - Job Centre Plus

    If it was me, I would want to know how they had assessed me in each ESA statement. I would also want to know the details of what the tribunal was looking at. This is highly relevant to the mobility element of the PIP award. I was turned down when I applied for DLA (without even seeing a doctor...
  20. Simbindi

    "Positive Health Statement" - Job Centre Plus

    It might be worth you getting it and seeing how the scoring compares with the PIP medical report.
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