IAPT is both NHS England's and the DWP's 'baby'. It will take a lot of work to publically expose the problems inherent in the IAPT model.
In the meantime it won't just be those with 'medically unexplained symptoms' being damaged by the lack of proper medical care, but also those with serious...
But what evidence does the 'GET/CBT premise' actually have? The deconditioning theory is just that, an unevidenced theory. That has been highlighted in many threads across the forum.
What we are facing isn't a GET/CBT premise based on robust scientific evidence, what we are facing is...
I was actually using autism as an example of nosological classification and diagnostic difficulties, not to imply the the condition itself has similarities to ME or making comparisons between treatment limitations in these disparate conditions. I was responding to your statement that we do not...
But that is because those promoting CBT/GET for CFS/ME have ignored the actual clinical presentation of ME (or CFS/ME), ignored the post exetional malaise (and that PEM is much more than post exertional fatigue), have wrongly asserted that the condition is simply '6 months of fatigue that is not...
Well, there are plenty in the autistic community who do make the argument against the effectiveness of behavioural interventions for a neurodivergent individual! However, that is a big topic which I can't do justice to on this forum.
I dont think that is true. For example, currently autism is diagnosed based on symtoms and clinical judgment only - there is not a reliable biological marker or test for it and there always remains the possibility of misdiagnosis of individuals. Athough there are some specific genetically caused...
Yes. There is plenty of proof in the clinical presentation itself, as well as the trajectory of the disease.
Patients have had decades of gaslighting, undermining this. A clinician that takes the time to actually listen and understand what ME patients are saying about their illness would...
I'm autistic - pretty much everything I write is a generic response to what I read, and usually my posts are just factual! I tend to quote bits of members posts as an introduction to my own reply if I think their words are well expressed and relevant to what I want to say myself.
It's noticable that he used the Oxford criteria for selection of patients. With the expansion of IAPT and the fact that it seems beloved by all political parties in the UK, I expect he thinks he will have a long and lucrative career, working on CBT (and GET) for 'medically unexplained symptoms'...
I have never been referred for CBT or GET in relation to my ME, so I had to use the comments box to describe the harmful effects of what the consultant said when I was originally diagnosed back in 1993. However, I hope the comments (as well as the survey question results) get taken into account...
I found the web page that shows the history of the Department of Work and Pensions' development of this idea, with all the relevant links to their commissioned research and 'evidence':
https://www.gov.uk/government/collections/health-work-and-wellbeing-evidence-and-research
It is definitely...
Unfortunately my council landlord is terrible - they treat their tenants like second class citizens, it would have been easier for me to get the adaptations I need (which aren't straight forward) if I had been a private tenant. I exchanged here from another council, who were far better...
I followed the link to your previous thread. How did your stairlift work out?
I had stairs that 'turned a corner' like the ones in your photo, in my previous house. Even though my M.E. wasn't as severe during my 2 years there (14-16 years ago) I had a number of bad falls due the odd shape...
With my POTs and the lifetime dyspraxia, I would definitely not be able to do that. I haven't had an OT out yet, but I did get the guy out from the company the council used to arrange the works, so he could see what I could 'reasonably' ask for, given the construction of the house (this can be a...
I think the council gets given a set pot of money per annum from central government. They then get to keep any surplus left at the end of the annual DFG budget, which they use towards other council budgets. There is no other reason. I did manage to read some district council meeting notes to...
Strangely enough, in the UK it all started with the major 'Welfare Reforms', and is definitely tied in with the BPS agenda, the original IAPT and the new IAPT for Long term conditions and Medically unexplained symptoms. The more I read, the more I can see how these things have all been...
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