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  1. Midnattsol

    News from Scandinavia

    I love that error, "post exceptional malaise". If this happens a lot that must mean there is a lot of exceptional work going on :whistle:
  2. Midnattsol

    ME and inflammatory bowel diseases

    GI troubles, IBS and increased permeability of the intestinal wall is not uncommon in a number of chronic diseases. It seems to be the case with ME as well, wish there were more studies. How plasma B cells and rituximab fits into it would be above my head as well :P
  3. Midnattsol

    ‘Help Holger now’ video about a Swedish man with very severe ME

    This sounds so awful :cry: I'm pretty sure the Swedish dietician education is similar to the Norwegian one, which means no information about ME (CFS is mentioned in one of the main used books in clinical nutrition, but that's about half a page.. I can't remember if severe patients were even...
  4. Midnattsol

    BPS attempts at psychologizing Long Covid

    NRK had an article some weeks ago about the same thing. Including a doc (or physiotherapist, don't remember) saying that patients had become afraid to exert themselves since the disease started with them being breathless and exertion reminded them of this :banghead:
  5. Midnattsol

    Oxford: MitOX Conference 2020, online, 3-4th Dec 2020

    I'm too tired to look through ore videos, must save my energy for my exam next week. He talked today of two different cohorts, one small one from Poland with ~50 participants who had a through clinical assessment, and one from UK (I didn't get if they were already in the biobank or if they were...
  6. Midnattsol

    Oxford: MitOX Conference 2020, online, 3-4th Dec 2020

    Agreed, it was very enjoyable :) I wish we knew what happened to the mild patients who made it through the exercise program, "made it through" doesn't say anything about how they fared doing that. On the PLS score plots we saw they moved further away from the healthy controls, but did their...
  7. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I'm not saying "not emphasize", I'm saying "add other things as well". Especially if this was the complaint to NEM. :) The new webpage has a nice page on the general ethical guidelines, to me there are potential problems with 1, 3, 4, 6, 7 and 8. When it comes to methods, they can hide behind...
  8. Midnattsol

    Rituximab and placebo response

    That's your cynical soul right there :whistle: How much do we have to exert ourselves to say something is not working good enough (if it is working at all)? I miss doing heavy workouts and hiking tall mountains, but I would still be interested in something that allows the "exertion" of daily...
  9. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I would also ask him to look at "The act on ethics and integrity in research". (My bolding) (https://www.forskningsetikk.no/en/resources/the-research-ethics-library/legal-statutes-and-guidelines/the-act-on-ethics-and-integrity-in-research/) I think this only stands in the preparatory works...
  10. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    If I recall correctly REK did comment on the fact that the candidate has financial interest, but after being told the project couldn't be carried out unless the candidate carried out the coaching (?) they agreed the measurements taken to avoid bias were good enough.
  11. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Another point I wish they would bring up is that the background for the application uses terrible references like SMILE, I don't remember the details and if they used other studies as well. It's low quality and that's the case with the other similar studies (ref NICE). At least following the...
  12. Midnattsol

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Just wanted to add my thanks to those who have contributed. :)
  13. Midnattsol

    Ketogenic diet

    One problem is that it's easy to not eat food that protect LDL from oxidizing when aiming for ketosis, as these often contain carbs (vegetables). Then again, many of the foods that are restricted can be problematic for a number of people, so in sum it might work out. As long as nutrient...
  14. Midnattsol

    Why is ME/CFS getting so little research funding?

    I think this contributes to us learning nothing about it at university. For my clinical subjects diseases have been neatly put into different specialities, and ME (and many others) are just not mentioned. My clinical subjects are not as in depth as I hope they are for doctors though (clinical...
  15. Midnattsol

    "No More Mr NICE Guy…" by Prof. Brian Hughes

    Couldn't agree more with the rest, loved it!
  16. Midnattsol

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    Doesn't Wyller try to treat a dysregulated HPA with CBT (and music)?
  17. Midnattsol

    Green Light therapy for pain, preliminary (Nov. 2020) results reducing pain

    Red and Near infrared light have been studied a bit, I know I've read about it in regards to joint inflammation, wound healing, sports and restitution. Also some cell culture studies. Not feeling up to go looking for sources just now.
  18. Midnattsol

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Misrepresentation would also be against the research ethics guidelines in Norway, and is mentioned as an example of what could be a serious breach of ethics in the pre-works* of our research ethics law. As far as I know, we have no cases where this part of the law has actually been tested. *I'm...
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