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I assume that any central sensitisation theory would imply all the senses would be effected equally. For me I am generally only aware of sensory hypersensitivities when in PEM and there seems to be a hierarchy of senses, for example for me noise is the first to become problematic where as it is...

My n=1 response is that for me the opposite may be true. It is hard to be objective about subjective experience that can not be independently calibrated, but one of the idiopathic pains I experience is toothache. My subjective experience of idiopathic toothache is that it is as painful as such...

I relatively recently have started to experience when in PEM a nondescript sensation, that I can only describe as a sense of emptiness or of something missing. It can be vaguely localised to my legs or upper limbs or involve the whole body but has no precise location; at its most intense it...

Could we see a risk of child protection procedures being wrongly invoked for children displaying ‘elevated IL-6 and hsCRP’? Having worked in health care in Scotland at the time of the Orkney satanic abuse scandal, and seen several inappropriate sexual abuse accusations, one as a result of a...

Though similarly just because eminent physicians have had people with ME pass through their clinics, this does not necessarily guarantee their personal preferences reflect reality.

I suppose I was thinking of myself, living alone in a detached house on a quiet lane with pretty quiet neighbours. The only environmental stressor generally is when the green across the road is strimmed once a fortnight or every three weeks.

There is a risk of evolutionary arguments becoming circular: crudely put evolution is the survival of the fittest, but the only measure of what is the fittest is what survives. Some have even gone on to say that Darwinian theories of evolution are not truly scientific because of this. So such...

Playing at being a Devil’s Advocate: At present we do not have the evidence to unambiguously say whether ME is a purely biomedical condition or if it is psychogenic: a condition theoretically could be psychogenic yet display physiological abnormalities. However after decades of looking the bio...

For someone bed-bound or even just housebound, the likelihood is that most of the time they are pretty calm to start with.

This seems a potentially enormous growth area: asserting certain symptoms are psychogenic without regard for alternative explanations, even if they occur in conjunction with biomedical disorders. For example the presence of fatigue in conjunction to cancer can then be seen as an additional...

Interesting that the article goes from attacking people with ME and their advocates to lauding the researcher(s) that the author finds ideologically sound without anything by way of concrete information or actual argument between the two. Even if people with ME were irrational activists that...

Unfortunately variability is one of the aspects of ME that some regard as evidence for it being a psychogenic condition.

A friend’s grandmother wore a corset two sizes too big when she was first presented at court. She had a naturally exceptionally narrow waist, and did not want people to think she was so vain as to have an excessively tightened corset.

Not upto reading the full paper this evening, but is the abstract indicating improvement of self reported measures, but no improvement on objective outcomes?

Given this study was an evaluation of regular treatment as part of an ongoing specialist service provision patients may not be aware they were the subjects described in this specific study. However anyone experiencing harm from input involving the standard service provision from the services...

This is not an experimental trial, at best it is a feasibility study as to whether it would be practicable to conduct such a trial. Though given it is an open label trial with subjective outcomes, they would have been far more productive putting the effort into developing objective outcome...

I initially did not link to the petition, being overseas, but now have signed.

I think that there will be varying degrees of uncertainty from person to person and onset to onset. For me my ME began with an acute episode of glandular fever (EBV), there was 100% overlap in symptoms between the glandular fever and the subsequent ME and no obvious way of distinguishing where...

I was confused by this too. I too have not read the article, but unless they are referring to very occasional seasonal viruses, the only situations I know of where individuals regularly have frequent bouts of illnesses is where their is an underlying health condition such as an immune disorder...

Fascinating that Paul Garner has conducted his health issues in the full glare of social media and the press, but now claims this is the first time he shares his story with the press. I am not condoning any death threats, which should be addressed with the police and then as appropriate in a...