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I wonder if this idea of actively catching Covid to boost preexisting immunity is potentially a dangerous one for the following reasons: Although vaccination reduces both your risk of developing a symptomatic form of Covid or a severe form requiring hospitalisation, it does not eliminate...

Am I being stupid, but if a group of disorders are described as functional is it rational to assert they have a ‘neurobiology’? If a condition (or group of conditions) has (have) distinct biomarkers, why are these not used as diagnostic tools, and surely they raise a possibility/probability they...

Wish this had been taken into account when the specialist ME services were set up.

An impressive initiative, I hope you get positive responses from your political candidates.

An excellent post, thank you to all involved.

Do we actually know the legal status of both the old and the new guidelines? Given the new guidelines went through every step of being adopted except publication, presumably the old ones have been declared in some way inadequate and the new ones also have some sort of legal standing. I would...

Here in the UK I am not eligible to apply for unemployment related benefits what are means tested, but do receive PIP (personal independent payments) aimed at covering the extra costs of living with disability. My application for PIP was under ME/CFS but in theory it is assessed not on your...

I can’t remember the reference but didn’t a study of outcomes from UK specialist services indicate their intervention was associated with subsequent increased levels of benefits received and reduced hours worked. I would see this as a potentially positive outcome for people with long term...

One of the social media posts I read cited Dr Myhill having done this as part of her evidence package in her complaint to the GMC, but did not actually say that Dr Myhill was the source of the request. Indeed why could she not use the accounts she already has?

Certainly not a week to be an S4ME moderator trying to keep posts on thread and managing many overlapping, diverging or converging threads, though don’t let this put anyone off volunteering. Here is info on the 2021 elections and forum volunteering options...

Would it be worth someone in the area contacting the Societies patrons? I would at least have thought Caroline Lucas would be sympathetic.

The local Cambridge group that set up this petition a couple of weeks ago were certainly more prescient than I initially realised. Their prognostications of doom have come true. Here is a Cambridge local news article from a week ago...

This article also seems to be breaching the press embargo: “Nice last issued recommendations on ME in 2007. New final guidance, seen by the Guardian and roughly in line with a draft report published last November, would have abandoned the GET recommendation and also advised that CBT – a talking...

Unfortunately, as you probably will have now seen, the new NICE guidelines have literally been pulled at the eleventh hour. We don’t know what is happening next.

If any of the Royal Societies do explicitly reject the new guidelines would it be worth pointing out the links of prominent GET/CBT proponents to these organisations? However my memory is terrible and I am struggling to draw up the list: Prof Sir Simon Wessely - Former President of the Royal...

What a brilliant Twitter thread from Brian Hughes!

Interesting that O’Neill is pushing against the NICE embargo in publishing this article today. Technically no one ‘knows’ until tomorrow what NICE will recommend in relation to GET or CBT.

Do we need several new threads? At least one on the responses to the new Guidelines and another on how services can be developed to bring them into line with what will tomorrow be the current guidelines.

An important point, in that this study purports to be descriptive of the experience of children with ME in the context of a specific service, but does not first seek to develop meaningful measures of ME, rather it primarily relies on rating scales reflecting an ideological understanding of the...

yes, this!