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Hi, The document from Dr Diane O'Leary released by ME Research UK is also up on the Forward ME Website in big red letters. I didn't see which came first. Dr Shepherd and other Forward ME members met on 28th March with Dr O'Leary, and on his return we considered the document and what it might...

Some of the press that featured the PACE reanalysis story: And the latest:

No. It was published early this morning, both in the online edition (see link above) and in the print edition.

Not sure if this has been covered on this forum, but Forward ME has managed to get its letter published by The Times today: ME Association blog:

My thoughts about BACME were that the ME Association should join to see what was happening and try to influence from within. It's quite a 'closed shop' by all accounts. When I last raised this with our trustees I was told that apparently they had tried to join but had been denied membership...

The Press Release was written by Frontiers: It had an embargo until 10.00am this morning. The BBC were going to write about it and we had given them comment from Dr Shepherd, but then they changed their mind, so we went ahead with the Frontier's release in its entirety.

The ME Association has been funding the biobank on its own for several years now. Initially there was joint funding but once it became established the others pulled out. We've just agreed further funding for another two years. This is all separate to the NIH grant(s) which are for specific...

Thanks Trish. Slipped through my radar - little bugger. Corrected now :)

Talking of MEGA I was surprised there hadn't been a statement from the CMRC about it. The website is still up - but last updated early last year - while as we all know it was unable to attract the funding it applied for from specific grants available at the time from both Welcome and the MRC. I...

Even from Australia! I'm impressed. Dr Shepherd's still wading through his stack of work and only just got to the announcement :)

http://www.bristol.ac.uk/ccah/news/2018/leadership-change.html

http://www.bristol.ac.uk/ccah/news/2018/leadership-change.html Can I leave it with you guys to pass on the news to others (like David Tuller)? Many thanks

The article came from the Liverpool Echo and was posted today - which is Mothering Sunday in the UK. Sophie was one of a number of people with severe M.E. (or their carers) who kindly contacted us when we appealed for case studies. We're hoping to get more severe M.E. stories into the press...

Looks like I was misinformed. Apparently, Prof. Mark J Edwards is NOT a member of the CMRC/Executive (Just had this confirmed). There is a Mark Edwards on the Executive but he is a lay member with pharma/industry expertise. Dr Neil Harrison is a member of the CMRC Executive and is working with...

This was the 2015 ME Association report on the PEM study being undertaken by Prof. Mark J Edwards and Dr Neil Harrison - both CMRC members. It includes the comments the study attracted from Prof. Jonathan Edwards at the time...

Prof. Chris Ponting will be deputy chair. The minutes confirm this - although as has been pointed out the initials should have been CPP for Chris Ponting and not CP.

Dr Shepherd has written an article for the GP Frontline magazine, and while I'm unsure of the publication date, it should be out soon (I'll find out when). The content was agreed with other members of Forward ME. And also, there's a RCGP conference later in the year and Forward ME are hoping to...

Well the transcript shows a good number of MPs, but I had a feeling I read a list of who attended here on Science4ME. Maybe on the original thread? Surprised there isn't an official record actually. Dr Shepherd may know, but I doubt he would have recognised every one of the MPs round the table...

The comment from the Minister "In recognising the need for GPs to be aware of the condition, the Royal College of General Practitioners identified CFS/ME as a key area of technical knowledge that GPs should have as part of their qualifying exams, ..." was one that caught my attention as well...